Last fall, the CBC did a very interesting series on people making end-of-life decisions. It was called Last Right.
Recently, this was in the news in Canada: Lawyers want Supreme Court to view man’s dying plea for assisted suicide law
My mother is 81 and was diagnosed with ALS approximately 3 years ago. At her last visit to the ALS clinic her FVC was measured at 30% diaphragm muscles at 21% and 25%. Her oxygen level was at 95%. When I measured it last week her oxygen level was at 93%. She is on a feeding tube and has a bipap...
Good Evening. I never thought I would join this type of forum. I am a caregiver to my husband. Newly diagnosed - July 2013. Prognosis is terrible because of the onset of symptoms that began only in March 2013. Apparently the length between onset of symptoms to diagnosis predicts the end of...
My dad was diagnosed a little over 2 and a half years ago, and at this point his limbs are totally paralyzed but he is still able to eat, drink, and talk (though not extremely well). His breathing is definitely going downhill, as he is on a BiPap machine day and night, and now we are wondering...
A friend of mine is a journalist who covers end of life issues for US News and World Report , I hope that by participating I can raise awareness for our disease .
Living with ALS: One Day at a Time - The Best Life (usnews.com)
Hi All,
I know there arent any known "stages" but I am trying to figure out when I should move back home to be with my mom. She is probably in the beginning, moving into the middle "stage." I would like to hear about the progression of others, how long people lived, how long the last stage...
Hi All,
My mom was just diagnosed two weeks ago. She doesn't have great use of her left leg, slurred speech, trouble swallowing. She has fallen a few times. I know there aren't "stages" to this but I would like to hear some stories about progression, how long people have lived with this, and...
Hello I just wanted to let all of you know that after her 2 year battle of this horrible disease her time has come this morning at 1:30. I was there with her as she took her last breathes. It was a terrible thing to see. Her breathing was very fast and her tempeture was very high. Then with no...
hi there I guess I am writing this to put my mind at ease if anyone else has been lucky enough to to have their loved one placed in Hospice
firstly I will say it is a wonderful place and the volunteeers and nurses are top notch, now onto my Mom, she was moved from home care to Hospice and it...
I have not been on this forum for a while due to our busy life. Someone from this forum said I would get more feedback if I posted here so thanks for that information. I have been caring for my husband for about 2 years now that he has needed a lot of help but he was diagnosed with ALS when our...
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