edaravone

Searched through prior posts that may have covered this, but anything related was closed. Has anyone on Riluzone felt less spasticity? I am on Edaravone and Baclofen but still encountering lots of spasticity in my legs. I was hoping Edaravone might reduce it. If Riluzone lowers glutamate, does...

Hi All, I'm having a really down day and need some help... and probably hugs.. i don't know. Here's a bit about us: My husband had his first symptoms 5 years ago in his calf muscles. Since then it pretty much stayed where it started, calf muscles. His toes are slightly affected, his knees a...

We are strongly considering flying to Tokyo to purchase Edaravone for my father. I contacted his ALS clinic at Sunnybrook. They are telling me that I have to use a certain infusion clinic at $225 per infusion. This will end up costing much more than the drug itself! Does anyone in Canada...

Hi there, I'm new to this forum, so I hope I don't break any rules by posting a message here. Edaravone (Radicava) has been approved in the US, but I'm wondering how can the rest of the people have access to this drug from Europe. In my case I live in Spain. I have two important questions...

I finally had my appointment in the ALS clinic on Monday. I met with my case worker, OT, PT, and someone from the MDA. I now have what seems like a ream of paperwork to read through. I guess the good news is that they hope to start my Radicava (edaravone) infusions middle to late August...

Hello everyone, I have not been here on the forum for quite some time. It may have even been a year or so. I am progressing down the ALS black hole. So, like many others, I am looking for alternatives to deal with this crap. I looked at some of the posts on the forum about RCH4. Unfortunately...

Hi all, Since the FDA in the USA have approved edaravone for use in their country last week, the UK should try its damnest to do the same, asap so as to extend as many lives as possible. I have written to my MP in the UK, below, and have so far had no response. Can all UK forum members to...

Anyone have any information that would suggest edaravone is effective for PLS? Deb

https://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm557102.htm Great news! Not a cure or a miracle but very welcome!

ALSUntangled is looking for PALS who purchased and tried any forms of Edaravone. Email bedla001 (at) mc.duke.edu if you are willing to share your experience for our upcoming review.