eating

  1. T

    bulbar symptoms?

    Hi all, I'm a 33 yo female and have been fearing ALS for about 10 months now, since I started twitching all over my body. 8 months ago I had an EMG in my right arm and leg, came back normal. 6 months ago I felt like I was having difficulty speaking so I went to my neurologist and he cleared me...
  2. D

    Don’t lose weight has been the advice.

    The ALS Clinic and some places on this forum indicates not to lose weight. One of the first symptoms I noticed was that I was losing a little weight, but was gaining around the middle. It seemed to me that this was the result of atrophy and I conveyed those thoughts to my first neurologist and...
  3. M

    My sister and I have the same symptoms at the same time after my father was diagnosed

    Hello everyone, I am from Vietnam. My father 63 years old, was diagnosed ALS 4 months ago. Unfortunately I (33) have symptoms same with my father: such as muscle twitching, feel weak and numb at left hand and leg for 2 months. I think about genetics and I had visited some hospital in Vietnam...
  4. T

    Bulbar als?

    Hi 6 months ago I got very sick lasted a month. Couldn't breathe hard time swallowing and talking. Lost 9 lbs in a week. Got rubber legs. Basically became wheelchair bound because every time I would walk I couldn't breathe. They put me on a ton of asthma meds which made me worse. Testing heart...
  5. B

    Constant use of Bipap machine

    Hi Everyone, Haven’t posted in about a year. My father was diagnosed approx 18 months ago with ALS and he is in the final stages. He has trouble holding up his head, can barely walk on his own, not eating anymore on his own and getting all his nutrients from a feeding tube. Just this week his...
  6. T

    Breathing/ sleeping issues, please help

    y*Tb12*on September 29th, 2018, 3:07 am Hi guys, I have 7 years of symptoms, had so much tests and seen so many neurologists and neuromuscular specialists, emgs were clean and they didnt suspect anything. Symptoms: Fasciculations Cramps Tremors under muscle stress Nerve pain Fatigue Joint...
  7. W

    Worried sick about my husband

    Hello, Thank you in advance to anyone who responsds. I’m worried to the point of severe panic, not sleeping or eating about my husband. He’s been to his pcp had labs that were normal for Lyme and vitamin deficiency, being referred to Neurology. Symptoms: Does this sound like it could be ALS...
  8. A

    Looking for guidance

    I hate to bother each of you, but wondered if you had any insight. For the past couple of months I have had a Globus sensation, excessive bleaching, feeling like my belches are getting stuck, gurgling sound in throat, some regurgitation and the feeling of pills being stuck in my chest. I also...
  9. KimT

    My Cooking Issues Solved....for now

    I'm a very picky eater. I eat 90% organic and rarely eat out. I had a lady coming on Tuesdays to make some crock pot meals and do my bedding/laundry. She hasn't been here in nearly a year because of her own health issues. Recently I tried a meal service called Healthy Chef. You can place an...
  10. M

    I would like your thoughts please

    Thankyou for your time. I'm a 35yo mum of 2 young children, and initially visited a neuro 2 years ago to assess numbness of the skin on my big toes - I realise numbness points away from ALS, but want to give a full picture. It persisted and he said to re-visit if it hadn't improved so I did...
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