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My name is Kelly and I am 47 years old. My father passed away from bulbar onset ALS in February 2012, after a 4 month battle. About a year ago, I began noticing slight slurring of my words. It wasn't all the time, so I dismissed it. About Jan or Feb of 2016 I began noticing that my...

Hi all, Curious to know what kind of positive effect Neudexta may have on speech issues? Does it make it any better? Just holds off progression? I don't have PBA, and swallowing isn't too bad. It's movement of the tongue when eating and speaking that's the worst of it. I asked my dr. and...

hello my grandmother has had ALS diagnosed for 10 years. the last 3-4 years bed ridden no voice maybe 1-2% no movement , constant aspiration from food and water because she didn't want feeding tube and enjoys eating. she is 78 years old she now has severe pneumonia from aspiration and in the...

Hello, My father has ALS and has no use of hands, legs, or torso muscles. His breathing, eating, and swallowing are okay for now. His wife is his primary caregiver and I help out when I can, but I work full time. We've been trying to find a good aide to help care for him at home during the...

I HAVE read the stickies and I'm aware that twitching by itself is hardly indicative of anything. I know I have anxiety and am currently taking medications for it. But I have just a few questions because I DID hear from my mom who works in a nursing home about a man who has ALS and he DID start...

Hi, guys lately I have been worrying about possibility of me having Bulbar ALS. I have some questions: 1. I have been having this weird lump in the throat feeling. It is a constant feeling. I have it in the middle of the night, before eating, after eating, after waking up. You get the point. I...

So I am finally doing what I didn't want to do. I've lurked this forum every day for about 4 months now. I have hypochondria and have had bouts with obsession over other various diseases. I've turned out to be diagnosed by none of them. So when I went into my ALS scare I still had a conscious...

My hubby is in a wheelchair, we are in the process of getting him a motor chair. He was diagnosed Jan, 2016....it's been fast moving. I pray someone can help answer some questions! 1. My hubby is a big man, 280lbs.....is there anything out there to help me lift him into a vehicle from his...

I will be 20 this October and I have never been so scared... I moved to Denmark from south Europe on the 21st of August a year ago full with dreams and hope. However, things did not work as I wanted... I was not able to find a job as quickly as my colleagues and I had a massive problem with...

Hello, I've been having a lot of symptoms and I'm not sure what to make of them. I will admit that I've also been having a lot of anxiety in recent weeks. In February this year, while playing football/soccer, I had what I was sure was a subluxation of my right knee cap. It happened while I was...