early

  1. E

    Advice Wanted

    Hello all, I have never posted here, but certainly have used the forums for getting advice for everything! I appreciate everyone here who takes the time to help those with ALS and us CALS. My husband was diagnosed in Nov. 2013. Limb onset at 48 years old. He's done pretty well for someone...
  2. swalker

    Travelling in Yellowstone - Fall 2017

    I am writing this from our trailer at Madison Campground in Yellowstone National Park. I will post this message to a new thread when we get to cell phone coverage so you can share some of the adventures we are having. This has been an interesting trip. I debated long and hard about cancelling...
    • swalker
    • Thread
    • cell diagnose diet early equipment food permobil problem research software support travel trip van wheelchair wheelchair van
    • Replies: 35
    • Forum: Stories of hope
  3. B

    Abnormal EMG, no clear diagnosis, looking for emotional support

    This thread is not about asking whether I have ALS. After this past week, I've started to accept that I probably do. But I'm looking for emotional support going forward. My symptoms started in April with unexplained muscle soreness in my right bicep and thumb. I saw a neurologist: no weakness...
    • bsonrisa
    • Thread
    • abdomen abdominal advice als arm back clean emg cramps depressed diagnosis early emg fasciculations hours movement muscle muscles neurologist pain problem research support symptoms test thenar thumb weakness
    • Replies: 19
    • Forum: Could this be ALS?
  4. D

    Hello, please can someone help me I'm new and I'm scared and confused

    Hello, I just wanted to ask some questions, first I wanna say that I have worked out hard for about four years, I never really ate alot my nutrition wasn't great and I never drank alot of water and I sweat alot, well awhile back I developed a twitch in my left bicep and it was on and off, in May...
    • Dan10
    • Thread
    • als arm back confused cramping early family foot ice muscle muscles nutrition questions reflex scared shoulder stiffness symptoms test twitch twitches twitching wanted
    • Replies: 12
    • Forum: Could this be ALS?
  5. R

    Life update

    Hi everyone, I haven't posted on this forum in over a year now and I've been missing it in my life! My dad was diagnosed with ALS 2 years ago (age 57), and it was around mid-last year that I discovered this forum. It allowed me to connect with people also affected by the disease, who understood...
    • RSV Aus
    • Thread
    • advice age als back breathing dad diagnosed early family feeding food happiness heart hope life reading sleep stages support swallowing transfers trip update wheelchair
    • Replies: 8
    • Forum: Current caregivers
  6. O

    Worried regarding new symptoms and test results

    Dear All, I had been on here in 2014 with some complaints about twitching and muscle weakness, over the past 3 years it has stayed with me and gotten worse to some extent. I have been to many doctors and Neuro's and had 3 EMG, last was early last year on my limbs but doctors didn't pick up...
    • Ozcar
    • Thread
    • abdominal als do i have it arm arm weakness autoimmune back diagnosis early emg fatigue heart mnd mri muscle no diagnosis pain power pressure sporadic swallowing swallowing issues symptoms test twitching weakness worried wrist
    • Replies: 4
    • Forum: Could this be ALS?
  7. T

    Doc said weakness in one leg, spread to other leg right after. Help!

    Hello everyone, I have been going through some of the symptoms for early onset ALS for the past two weeks or so and I am terrified. I have read through the stickied threads at the top of this forum and I am still convinced that I may have some form of ALS/MND. The first signs were an...
    • Telmo
    • Thread
    • ability advocate als back balance brain early emg help! lift mnd neurologist onset symptoms twitching weakness
    • Replies: 42
    • Forum: Could this be ALS?
  8. H

    Concerning symptoms

    Hi, all. For the past 1.5 months I've been experiencing symptoms, which have been the source of a great deal of anxiety to me, a 20 year old male. I'll outline them in a timeline below: Mid-July to early August: - Noticed persistent, strange facial sensation in right side near facial nerve...
    • Hizgal
    • Thread
    • als anxiety arm back brain crying early eye fasciculations fatigue fingers headaches health helpful life mri muscle swallowing swallowing issues symptom symptoms timeline treatment weakness worried wrist
    • Replies: 8
    • Forum: Could this be ALS?
  9. KatieNBoyd

    Knowing that I missed it and living with it

    Here I am going on 9 months since my PALS death I have gone to grief counseling, I see a therapist and I write in my journal. There is the part of me that knows that I did every thing I was suppose to do. But there is the part of me that repeats over and over the night Jon died. I got him...
    • KatieNBoyd
    • Thread
    • back bed early grief hearing hospice night sleep trilogy walker
    • Replies: 9
    • Forum: Past caregivers
  10. N

    My Father

    Hi All, My father passed away on 8th Aug 2017 from ALS. I am writing this for others who may find our experience helpful. We live in Mumbai, India. My father showed symptoms for ALS since Feb 2016. Initial symptoms included weight loss, weakness, lethargy (especially in the morning) and...
    • niravshah81
    • Thread
    • als bipap breathing diagnose early family father goodbye health helpful hours information mnd morphine night onset oxygen sleep swallowing symptoms tests travel ventilator weakness weight loss work
    • Replies: 9
    • Forum: In memory of
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