Firstly, the good news: after 4 months of being stuck in bed all day, the ALS Foundation is sending a loaner powerchair. I am thrilled!
The thing is this. A lot of my progression all came on at once. So I have swallowing troubles, but I have not even eaten outside my home once yet, since it set...
Hi everyone..
So i've been a little confused with whether we received a diagnosis when my mom visited the specialist a few weeks ago. Today she sent me a copy of the letter she sent to my mom's neurologist and I'm finding myself as confused as ever. Or maybe i'm just in denial? The letter was a...
I don't know what others know about Vital Stim therapy, but my dad had a series of these treatments. Not long after, his speech ( which we had to work hard to understand but still *could ) became unintelligible. My family is now wondering whether the treatments might have made Dad worse. For...
This is my first thread. I was diagnosed 5 weeks ago, but my symptoms started 6 months ago. I have significant dysphagia (my speech isn't very understandable) and i have swallowing problems.
I saw a speech therapist today who recommended electrical stimulation therapy but i don't know if i...
Since I have dysphagia, and no longer eat "soft cookie-like" textures, and try to eat my meat carefully be chewing it down....(YEESH--it takes me forever now to eat a meal...lol), I am interested in those that have gotten "aspiration pneumonia".
First, how did you know you had it?
Second, and...
hello and good day i have been suffering from progressive muscle weakness of the limbs and bulbar muscle's i have been through a gammet of test the last 2 years spinal tap mri's muscle biospy 6 emg's everyone mumbled motor neuron disease or anterior horn cell disease i was recently sent for...
age
als
arm
atrophy
bulbar
cell
diagnosis
dysphagia
emg
family
hyperreflexia
motor neuron disease
mri
muscle
muscle weakness
possible als
progression
symptoms
test
weakness
young
After lurking here for some time, I have finally decided to post my story and see if I can get anymore opinions and/or needed support. Until now I have not posted as I never wanted to be perceived as one of those who is just sort of letting hypochondria run away with them if you know what I...
Andy had his Swallowing & Pulmonary Function test done today. We did not get good news. :sad:
On the swallowing test:
He failed every sip that he had to take from start to finish. She said that the speed of his swallowing was 3 times slower than what it should be, and that his swallowing...
Hello all,
We are new to this board (this is our first post), but after reading previous threads, we are certain one of you will be able to help us. Today, my husband was given a diagnosis of a motor neuron disease, however the neurologist said he wasn't ready to be specific on which MND as...
Hi
I've included some of the medical reports on my Mother - can anyone tell me if theres anything here that suggests anything OTHER than MND, or if it all fits the Diagnosis? Aplogies for the lengthy post, but there'll be no more like this :)
Steve
June 12 – Gp - On examination I could find...