dying

I need help. I have been able to go the bathroom on my own. I move my PWC as close to the bathroom door as I can, get up and grab anything I can to reach the toilet. No problem, yet, with doing that. Problem I am having - it is getting harder to get myself up. I have the attached elevated...

Everything seemed to be going okay with the PEG. Then, the day before I was supposed to fly to Niger for work for a week, then Paris for a day, then MIT for a week of training, she had a little fall. She was able to get herself up somehow, crawling to the living room and hoisting herself up with...

Hello, I woke up at 3:00 AM this morning and couldn't breathe. My throat was nearly closed completely. All I could do was squeak in some air. My husband heard me and jumped out of bed to try to assist me. I was in a major panic. I could only get 3 or 4 words out at a time...very squeaky...

Hi everyone. I was doing pretty well over the summer. The flashbacks ended, I still missed my dad but I wasn't obsessing over death and dying every day. I got hired full-time at my job after six months as a consultant so that was great news. Next month, 11/28, will be the one year...

I don't mean to take the place of stickies or step on any moderator toes. If they feel this post is unwise, I will understand and respect their choice to delete it. First, if you are reading this and have not read stickies, I beg of you please to read the stickies first. Truth is, after you...

Jay starts to feel really bad usually around 7pm. Last night was bad. After I brushed his teeth he had a look on his face like he was in pain. He has a hard time explaining how he feels which is frustrating to me because I don't get it. He did say everything hurt - his head, throat (Not like...

In a very odd coincidence, a casual friend of mine is also a CALS. Her then fiance was diagnosed with ALS is November of 2013 after a 9 month long diagnostic process. Given a lot of his symptoms and that he is a vet and over 50 white male (higher risk groups all around per our Dr anyway) I am...

Hi everyone, been a long time since I've posted. Long overdue for a bit of a rant. Things have been pretty chaotic for the last couple of months. If it isn't something at work, it' something with my PALS or something with the care facility. Thankfully the home front is relatively calm, only my...

Just wondering if anyone has had any issues with vertigo? This was so bad i had to fall back onto my bed. Any movement caused to to come back. Jeez...i truly thought i was dying. No way to get into a car so off i go in an ambulance. I described it at the er as a prolonged violent dizzy...

Does anyone else struggling with answering this question? Whether it be your mom, dad, husband, brother, sister, etc.? This may seem like a strange post but I have been struggling with this lately. I have a wonderful support system with family, church family, and friends, who genuinely care...