Hi everyone,
I just wanted to share my experience so people here might be able to have a peace of mind. I am 32 years old, male, and am otherwise healthy.
Two months ago, I started to have twitching starting in my right foot: my toes would move 24/7 => spread to the calf (while toes still...
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I am a admitted hypochondriac, at least in the past, though I know that because I am, doesn't mean I am always going to be wrong.
So, about 2 days ago I had a massive panic attack at work (not related to ALS) due to severe vertigo post-plane ride. The rest of the day I was very upset, nervous...
Okay, so this is a bit of a long read so I'm sorry about that. I'd also like to apologize because I know that replying if you do maybe difficult for some of you so I greatly appreciate it. I'm 20 years old. I know, the chances of me getting ALS are super rare but I need advice from someone that...
If you've read through roll call, you know my FIL is soon about to gain his angle wings from Cancer. Brian is doing better today than any other. DD and I were at the hospital to see him and he's not truly awake. I was able to facetime with our son, so Brian could see him.
Brian's been...
Hi,
Have anyone tried this machine to stimulate the muscles? I bought it couple weeks ago and have currently used it for my legs. I did some searches for a word "Stimulator" in this forum and found some old threads back in year 2012. According to PALS, these machines didn't help to keep the...
Yet, what choice do I actually have.
Brian was diagnosed 6 months ago. He has a weaker left hand and has progressed to using a cane, mostly to to strength and balance issues with his left leg.
Lately, I just can't stand it. I wound up crying in my bosses office just mentioning that my husband...
I do not come out on either side of the suicide or physician-assisted suicide issue, but I do staunchly support the right of PALS to be fully informed about their prognosis and treatment options. Indeed, in every debate concerning physician assisted suicide, all sides agree that the patient...
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I have re read many of the posts on what to do when our PALS pass on. I have all the paper work done, we have Hospice in place and the social worker has helped a lot. Or family has talked about his wishes and dying at home, accounts and titles transferred into my name and such
I have the...
It's amazing how in the end, this grief really is about how I've lost the love of my life and not as much about the way I lost him or the tremendous amount of caregiving I did to keep him alive as long as possible. But...the way I lost him is not OK either and I think it's given me PTSD. He was...
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