dying

Hello everybody, Last time I posted, I was concerned about possible bulbar als and told that my symptoms did not sound like ALS and to come back after I have seen my neurologist. Well my neurologist happens to be part of my family and I have recently spoken with her. Although it make me happy...

I have been informed that my muscle fatigue feeling feelings in my jaw and tongue that occur daily for the last month is not a sign of als. I have some medical friends. But when I was researching this I have read numerous pages of als causing muscle fatigue in jaw and tongue along with any other...

According to the Cal Dept. of Public Health, up to 20 ALS patients have taken their own lives under California's "aid in dying" law after six months. I do not oppose the general idea of permitting physicians to assist the suicide of terminally ill patients who would otherwise suffer...

Tonight I found something out that sort of rocked my world because it made me wonder just how blind I can be to who people really are. Due to numerous considerations, I can't break any specifics down in a public forum, but I learned that someone we called a friend for over a decade had in fact...

I got my probable ALS diagnosis on May 24th, days before my husband and i would leave on an anniversary trip to California. We have shared this horrible news with some family and our kids. This is just overwhelming and I am so confused as to why we have to wait 6-8 weeks for a followup at the...

Hello everybody, I hope you don't mind me writing on here, I didn't really know where to put it. This post is a lot different to my others. I would like to thank you all from the bottom of my heart. Secondly, I would like to apologise. I started getting symptoms nearly a year ago today-...

My PALS was diagnosed Sept 2011. Prob had it a year earlier. Started in his hands and was slow moving until about 2 years ago and it went crazy. He is paralyzed except for his neck and a little shoulder which still allows him to drive his power chair. He has always had a really good outlook...

My PALS had a fever last night that made him pretty uncomfortable. It responded to ibuprofen and this morning he's feeling much better. This has happened a couple of times before but last night was more unsettling - he was frightened and felt he was dying (his description). I know fevers can...

Hi all, I have read this board everyday for four years, and there is something I'm still unclear on. I was hoping someone might be able to explain it to me here (for those of you who don't know me, I usually post on the PLS board. I have a UMN diagnosis of hereditary spastic paraplegia that...

This is mainly a rant. I'm frustrated by emotional lack of acceptance of this diagnosis. Intellectually I am there, but emotionally I keep torturing myself by over-analyzing everything and thinking up reasons why maybe it could be wrong. Part of it is that I am not disabled by this yet...