drugs

  1. D

    Treatment with cannabis oil, please share your experience

    Dear Sir or Madam. My daddy 57 years old. In November 2017, my loved daddy was diagnosed with amyotrophic lateral sclerosis (ALS disease or motor neuron disease). Bulbar shape in the initial stage. Symptoms: the blurred (smeared) speech, twitching of the muscles of the arms and shoulder girdle...
  2. David

    Leapcure Muscle Cramp Trial

    Do you have frequent muscle cramps? Have you been diagnosed with a motor neuron disease like Amyotrophic Lateral Sclerosis (ALS), Primary Lateral Sclerosis (PLS), or Progressive Muscular Atrophy (PMA)? If you’ve been diagnosed with motor neuron disease and meet the requirements listed below, you...
  3. M

    Drugs and supplements

    All articles talk about drugs and supplements to help with strength and twitching but nobody says what they are. I’m getting frustrated with trying to find what they are. Can someone please help me with this. Mod Note: email deleted. Plz send a Visitor Message if you wish to respond. Or...
  4. S

    Leg weakness, balance problem, twitching on right arm

    Hi dears For about 8 months i have had weakness on my right arm but just in the mornings and when i am waking up it fades away. But beside it i have balance problem in my legs...it is hard to stand and walk. i am swaying and my legs are shaky and jelly.. 2 days ago i felt that my right leg is...
  5. J

    Still here thanks to RCH4

    RCH4 revisited again I have been on the ALS drug RCH4 for the past 19 months and I am upset about the moderators comments which are most unfair to a charity who has provided both support and RCH4 free of charge worldwide for years. The moderator here, Laurie, has locked two previous threads...
  6. A

    Corestem's Neuronata-R

    I was just reading this market report & it makes mention of 3 drugs available on the market for ALS - Radicava, Riluzole & another called Neuronata-R. I've never heard of that one before & it looks to be a Chinese Stem Cell therapy? I wonder why it made it into this report... Amyotrophic...
  7. Lkaibel

    Yes! Bad Appendix!

    SO I never thought I would say “Great! Brian has appendicitis!” But after a harrowing week I am saying that exactly. Brian started Radi this week and they gave him Prednidone with that to prevent allergic reactions. The Dr thought his rapid escalation of weakness this week was a reaction to...
  8. A

    HERV-K and TDP-43 Expression Bridges ALS and HIV Neuropathology

    Have recently read two interesting research papers on Human Endogenous Retrovirus-K and TDP-43 and it's connection with HIV Neuropathology. It looks like drugs for different kinds of HIV Neuropathology are approved by FDA and can be used for ALS. Please, correct me if i'm wrong. Would appreciate...
  9. T

    hospice drugs and limited food intake

    My mom is down to drinking just one boost a day...sipping it slowly throughout the day. Does anyone know how long she can survive like this? She also had a half of a rootbeer today since she was craving that. But, no other liquids. She can barely swallow and is very weak. Also, meeting with...
  10. B

    New member intro, glad to be here...

    Hi, I'm Brook. I didn't know where else to post this. I'm not really asking if I have ALS. I am introducing myself and venting my fears to a group of compassionate people. I read all the stickies and apologize in advance if I'm too verbose. First off, I have been lurking on this site for...
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