drug trials

Hi Guys, My mom was diagnosed with ALS on March 5th. Over the past year she has experienced increasing weakness in her arms, along with some trigger finger-like symptoms in her hands. She also had several uti's/urinary problems. After this initial diagnosis, she decided she wanted more info...

I have been taking Nuedexta ever since I was in phase 3 drug trials and it has helped me a lot with the pba symptoms of laughing/crying. I have not had an episode in a long time, but today I got really frustrated trying to communicate with my mom over the phone and I just lost it. Crying, and...

Hello folks. I am considering applying for compassionate early access to these new drugs: Dex, NP001, and CK....I need your opinion on which one seems to have the most effective slowing down of progression. If you are on any of these three, let me know about how it is working. Thanks pals and...

Hello pals and cals...were you turned down for one of drug trial because you couldn't pass the breathing test, or were diagnosed for too long? Try this, what have you got to loose? The ALS- Treat Us Now! Steering committee) is initiating a Pilot 1 initiative to allow early access to...

I am confused when participants in drug trials claim that their symptoms improve or are less severe. From my understanding of ALS, actual improvements will only occur when the dead motor neurons are regenerated or replaced with new ones. An incredibly tricky process. Our bodies cannot...

This just came in from the MDA - ALS Division: As it is encouraging for those diagnosed in the future - I am praying that the success of these trials speeds up. Trial participants receiving the highest dose of CK-2017357 showed symptom improvement in the first stage of an ongoing phase 2 trial...

I'm reading through the drug trials, and I'm wondering, can our loved ones, with both ALS and FTD ever get into any of them? Are we considered so different, so hopeless, that we should just go home and wait for the journey to run it's course? I don't mean to sound macabre, it's just how I'm...

Last Feb I noticed the first signs (while lifting weights one day I could do 10 reps, next my left arm could only do 5) by June I saw a doctor because I was having some small trouble typing with my left hand, it's 10 months since the first sign and I can still type (though not 1/2 as quickly as...

I was diagnosed with ALS over 15 years ago. I went through cat scans, MRI's, mylograms, countless nerve conduction tests, blood tests,and had tissue removed from my thigh that was sent to the University of the Carolina's, that came back positive for motor neuron disease. Since the neurologist...

I have been suffering MND/ALS for 5 years where two legs are already useless condition for abnormalities in muscles and two hands recently abnormalities started. In 2005 ,Doctors first identified me MND by EMG test. Recently (15th May 2009) done EMG diagnosis again and report demonstrated MND ...