Thank you for adding me/us to the forum. In brief, here is our story: My husband lost his mother to ALS when she was 59 years old. She had one aunt, one uncle, and two first cousins who also passed from ALS. There were a couple other family members who may or may not have had early signs, but...
My dad has been diagnosed with "MND likely ALS " a month ago in North Western University hospital in Chicago. In 4 days we are going to his second ALS clinic visit. During our last visit, i was too overwhelmed and unprepared to ask questions, but i want to make sure i am all of the important...
I'm not sure about it and would like to know what you all think about it.
Here it is...
December 16, 2014
Dear ALS Fighters and Families:
There is an opportunity for us to expand WFND’S current therapy program for PALS (People with ALS) and to totally stop ALS progression. Although...
ice bucket challenge
Nothing new, just a suggestion.
The thread over in the ALS Drug Trials forum, Amino Acid - L-Serine, is closed so I thought I'd put this here.
I got the bulk supplements stuff off Amazon because it's way cheaper than pills. But it's really nasty sweet.
In the mornings I just add it to my...
Well I just got the word, I go for my screening visit week of Sept 9th. Only taking 25 participants, and with me living in VA, guess lucky I got this far.... First symptom coming up on 2 years, and diagnosis was in Jan so my timeframe is shrinking in terms of getting into trials...
I wonder if any one has read or knows of any drug trials in early or late phases of research that hold promise. I'm familiar with the widely known ones such as the Brainstorm trial in Israel and the other stem cell trial that's taking place at Emory in Atlanta, but looking for something else to...
I'm still very hopeful that a cure will be found for ALS even when some recent drug trials have failed flat.
Apparently, Stem Cells treatment is one of the few treatments being investigated that may show some promise on fighting this dreadful disease.
Although, I not likely might see it in my...
walk to defeat als is the major fundraiser for the als association. money raised is what provides grants for research and drug trials world wide. it is important for us recently diagnosed and able to get out and about to support this mission. organise a team, seek sponsors and join a walk...
First off, thanks for reading. I started a thread on the general discussion forum, but I thought this was probably the better place to ask my questions.
Basically, my mom was diagnosed with ALS last month, but when she saw a specialist 2 weeks ago, he told her she may not have ALS...