Hi everyone,
Not sure where to start but I wish I can find some kind of help...
Mom was diagnosed a bit more than 2 y ago with bulbar onset.
It has progressed enormously in the past months to the point where she does not talk, eat and move anymore; just slightly her head and one of her hands...
Hello all,
I was diagnosed with ALS in April of this year, about a year after I starting showing signs of slurred speech. So, I'm not newly diagnosed, and have had time to process my situation, but I'm new to the ALS forums, having only registered recently. I realized I would benefit from...
I have read, and read, and read, and read, the alsforums and other things on the Internet. I know ALS is a failing not a feeling and I admit almost all of these symptoms are feelings. But I also feel like I have read stories where yall can trace your ALS to
minor events preceding diagnosis. I...
ankle
anxiety
back
burning
cold
cost
cramping
diagnosis
driving
emg
family
feeding
fingers
foot
health
information
lift
movement
mri
pressure
problems
shoulder
story
symptoms
thumb
tongue
twitching
vision
wanted
weakness
work
worried
worry
My wheelchair should be arriving in January. Now I need to figure out what to do about a vehicle to transport the wheelchair and me. I am very curious to hear what others are doing.
For now, I am able to walk the length of the car and can still drive. So, loading the wheelchair into the back...
Since January my boyfriend has been struggling with some symptoms that appear to be ALS in some regards but in other ways we think it certainly is not. He had an EMG in August which clearly states no sign of motor neuron disease. We were relieved. We have had multiple referrals which led us to...
age
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clean emg
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foot
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motor neuron disease
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wrong
I think the baclofen may be a good thing for me. My doc was hesitant to put me on it, because of the side effects. She based the hesitation on the fact that I am still driving, and pushing my self to exercise and be active.
I am on 5mg three times a day, to be increased to 10mg after a few...
hope no one minds me asking but before you were unable to support yourselves on your legs what did it feel like. I am still working as my job is 'desk bound' but more and more when I go to stand my thighs feel like they cannot support me, I feel like jelly and just want to flop and not try...
Greetings,
I was wondering if my symptoms of abnormal arm fatigue and fasciculations, both of which are symptoms that ALSA mention as early symptoms of ALS, are consistent with those of a patient with ALS. I'm a 26 year old male about to get my masters in statistics on Saturday, :)!
I'll try...
advice
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awareness
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bed
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brain
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driving
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eyes
fasciculations
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health
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neurologist
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reading
statistics
story
symptoms
symptoms of als
tiredness
twitches
I'm usually very positive, but finding it harder and harder lately! ALS has stolen so much from me already and I'm still just at the beginning! I lost one of my jobs because insurance won't cove me driving patients if I have ALS. My other job is threatening to let me go because I'm moving...
It is only in the past 4 weeks that life has changed so incredibly much.... before it was me struggling to manage the care of my household, husband, 6 & 2 year old children, managing my career (I am a scientist) and managing care of my brother (6 years into ALS diagnosis) while also managing the...
ability
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