dps

  1. T

    My story of the Diaphragm Pacing System Implant

    I had the Diaphragm Pacing System (DPS) implanted on Wednesday April 11 and I thought I would share my experiences here for those who are interested. While researching for my own decision I soaked up everything I could find here and elsewhere on Al Gore's invention but I still wished there was...
    • tmasters
    • Thread
    • abdomen age als atrophy back bipap candida cold diaphragm dps emg fda free friend fvc health helpful hope hours ignore insurance medicare movement muscle muscles music neurologist oxygen pacer positioning pressure problem questions stats story support surgery test tests twitching video wanted
    • Replies: 39
    • Forum: People with ALS (PALS)
  2. M

    Diaphragm Pacing System

    Hello all, I am new to this forum. My mother was diagnosed with ALS in February 2012 (but has had symptoms since July 2010). She is 72. She cannot breathe on her back at all, uses BiPAP at night, walks with a walker, uses a chairlift for the stairs (PWC on order), and her speech is becoming...
    • MP's CALS
    • Thread
    • als back bipap candida caregiver clinic diagnosed diagnosis diaphragm dps family helpful hours life medical night pain pwc questions second opinion speech symptoms tests walker
    • Replies: 13
    • Forum: General discussion about ALS/MND
  3. SixthKid

    NeuRx DPS

    My Dad is going to Brigham & Womens today to be tested for the NeuRx Diaphragm Pacing System. I read the previous thread regarding this (it's now locked) and although I am thankful for all the research that is out there being done, whether it is for ALS or cancer, etc. I just have my doubts if...
    • SixthKid
    • Thread
    • als breathing dad diaphragm dps feeding feeding tube lung capacity research work
    • Replies: 12
    • Forum: Research and trials
  4. M

    FES story . . . a technique similar to DPS

    Watch This Robot Control a Person's Arm Using Electrodes - IEEE Spectrum
  5. M

    These DPS notices say news is good for over 50% of the newly diagnosed ALS patients

    The language of this new and latest notice, you may need to 'login' to their web site to read it, suggests that more than fifty percent of newly diagnosed ALS patients are likely eligible for DPS, whereas other notices have either not articulated an estimate or offered an estimate that implied...
    • MuonOne
    • Thread
    • als diagnosed dps fda ice media newly diagnosed newly diagnosed als respiratory respiratory failure therapy video
    • Replies: 25
    • Forum: Research and trials
  6. M

    Diaphragm pacing system receives FDA approval for use with ALS patients

    Diaphragm pacing system receives FDA approval for use with ALS patients
  7. J

    New and have some questions about drug therapies

    Hello all! I'm new here and I'm in the process of being DXed. I want to thank you all for sharing so freely on here..for people new to the process, it brings great comfort as well as a wealth of knowledge. My appointment with the MND/ALS Center at the U of U is over a month away. I can't...
    • Jewels99
    • Thread
    • als data decline dps drug therapies drugs fals familial frustrated info lithium mnd mnd/als new here questions respiratory sod1 tamoxifen treatments trial
    • Replies: 7
    • Forum: General discussion about ALS/MND
  8. MtPockets

    Stimulation of Diaphragm Muscle in ALS

    This is information about a trial program to insert electrodes into the diaphragm to help with breathing. You can read the details at: http://mda.org/research/view_ctrial.aspx?id=182 Synapse Biomedical, in conjunction with Case Western Reserve University and University Hospitals of Cleveland...
    • MtPockets
    • Thread
    • als breathing data diaphragm dps information muscle research support trial wes
    • Replies: 4
    • Forum: Research and trials
  9. C

    Diaphragm Pacing Stimulation

    Anyone heard of DPS - Diaphragm Pacing Stimulation device? Seems like a simple idea. Excerpt from the link below: The goal is to free a person’s dependence on a ventilator over time by stimulating the diaphragm with intermittent electric impulses. They cause the diaphragm, the primary muscle...
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