dope

  1. O

    Respiratory Failure on Trilogy

    My dad was diagnosed in May last year. Within 3 months he was in a wheelchair and 3 months after that his speech started to go. He is now in the end stage - no speech, no arms/legs, and unable to swallow. His FVC was 24% in January. He had been using the trilogy mask at night, but over the last...
  2. Nuts

    Mixed up the meds....

    One of my least favorite tasks is sorting pills, so I do them in advance in nifty sorters that have four boxes for each day of the week, and each day's pops out to be easily carried throughout the day. One set of boxes for me, and one, all blue, for Matt. Getting ready to take him out for...
  3. trfogey

    Ajrrt

    This is the occasion of my 1000th post on the board -- well, the 1000th post that made it through m o d e r a t i o n and wasn't subsequently deleted for violating one or another of the board rules. At any rate, the passage of such a milestone should be marked with something thoughtful or...
  4. irismarie

    neuro visit

    She is determined it cannot be ALS because 1) there is so little muscle wastage. é) She saw no fasciulation No listening to the fact that tho there is still muscle it is nothing like it was or t the fact that I have fascifcultaions all over almost all the time. Of cours not when she was there...
  5. irismarie

    so many decisions

    It seems at the stage I am - no def. diagnosis but pretty certain - there are so many decisions to make, not the least relative to persons around one. I know this seems personal and of course I shall make my own decision but not knowing exactly how things pan out I could do with experienced...
  6. J

    I am very sorry, I was wrong, Please read!

    I made a mistake and I am very sorry. Yesterday I blocked wright’s ability to post on my threads after he wrote “There is a reason they are physicians and you're not. You can't google your way into an M.D. degree and that is what it appears you're trying to do.” I did this before I saw the...
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