donations

  1. Lilacs53

    Got a email from Winning The Fight

    I'm not sure about it and would like to know what you all think about it. Here it is... December 16, 2014 Dear ALS Fighters and Families: There is an opportunity for us to expand WFND’S current therapy program for PALS (People with ALS) and to totally stop ALS progression. Although...
    • Lilacs53
    • Thread
    • als bucket challenge clinical clinical trial cure deanna death donations drug trials dying early health hope ice bucket challenge life metabolism neurology problem progression research supplement test therapy treatment trial wfnd work
    • Replies: 16
    • Forum: General discussion about ALS/MND
  2. lgelb

    RIP, dear Larry

    Larry left us peacefully this morning, after five years of ALS and a lifetime with Marfan syndrome. His brain, spinal cord and other tissue have been donated to ALS research via the National Rare Disease Interchange (NDRI), which procures donations across the US. Larry talked, ate and responded...
    • lgelb
    • Thread
    • als als research bipap book brain caregiver donations eyes friend hospice life lung capacity medical morphine research work
    • Replies: 27
    • Forum: In memory of
  3. F

    Initial Commitment of $21.7 Million from Ice Bucket Challenge

    The ALS Association Announces Initial Commitment of $21.7 Million from Ice Bucket Challenge Donations to Expedite Search for Treatments and a Cure for ALS Additional $12.5 Million in Matching Gifts Secured Bring Total Commitment to $34.2 million Washington, D.C. (October 2, 2014)—After the...
    • FrenchFries
    • Thread
    • age als als research alsa chair challeng clinical cost cure data diagnosis donations early genetic gifts hope ideas increase information medical neurology ohio progression quality of life research risk robert stem cell support therapy website wes work
    • Replies: 0
    • Forum: Research and trials
  4. Nikki J

    A good start?

    This from the ALS association about funds dispersed The ALS Association Announces Initial Commitment of $21.7 Million from Ice Bucket Challenge Donations to Expedite Search for Treatments and a Cure for ALS - The ALS Association It looks like they are funding work on important issues and there...
  5. B

    I did a mistake. Now, very worried about ALS.

    Hi all, (I'm french, so excuse me for my writing). First of all, I would like to express all my support to people diagnosed with this disease. I discovered ALS when typing my symptoms on Google and I was very affected. I decided to join a french association to make donations for research and...
    • Bodybuilder
    • Thread
    • als anxiety atrophy diagnosed donations fasciculations fda ice mistake neurologist progression research risk steroids support symptoms weakness work worried worried about als
    • Replies: 5
    • Forum: Could this be ALS?
  6. hn7609

    ALS Walk vs Ice Water Challenge

    Our local walk is coming up at the end of Oct. and I find myself in a bit of a quandary. My wife and I have been active the last 2 years with the walk and have gotten a couple of thousand in pledges each year. This year my old employer is holding a fund raising golf tournament in mid October...
  7. R

    ALSA Ice Bucket Windfall

    A majority of the ice bucket challenge donations to ALSA were made before they added an option on the online form to restrict donations to research. Those are technically unrestricted and ALSA has made it clear that they are slowly working on a plan that will include things outside of research...
  8. L

    Best place to donate?

    I thought I would post this in the DIHALS section because it is likely to get the most views. I have seen a number of places to donate for ALS support due to the ice bucket challenge and was wondering where you would recommend sending donations? Where can we make sure the funds reach the...
    • lurker
    • Thread
    • bucket challenge dihals donations ice ice bucket challenge support
    • Replies: 12
    • Forum: Could this be ALS?
  9. R

    ALS Finally Getting The Recognition It Deserves

    Cannot begin to describe how stoked I am that this Ice Bucket Challenge started by Pete Frates and his family has taken off. I'm a teenager in high school, and to have my friends, family members, and my football team and coaches accepting the challenge and raising awareness is just awesome. The...
  10. E

    ALS Ice Water Challenge is taking off!

    I posted this under Stories of Hope as well but wanted to share with you all. An amazing awareness is happening on Facebook! The news is reporting that donations to the ALS foundation are going crazy! The ALS Ice Water Challenge is all over not just Facebook, but the news as well! Just...
Back
Top