Well, yesterday I woke up and got ready for work, Mom didn't stop by at 7am like she normally does. So I called her and no answer. I find out shortly after that Mom's sister (the fake one who is milking the disability system and cares only for herself) has picked her up at 5am so they can take...
My Mom has some confusion associated with the ALS, but also had a brain injury about 16 or so years ago that created a blood clot requiring surgery to remove it. I spoke with the ALS clinic last week and was told these are a factor in my Mom being confused and having FTD. She is not to the point...
So question on this stuff... After I pass, assuming that is when we still have a child under 16 in the house, my wife will receive some amount as a survivor benefit. This would continue until the youngest child reaches 16. Pretty sure that part is correct, yes?
My wife thinks she came across a...
I am terminally ill and dying I have COPD meaning my lungs are gone, also MND motor neurone disease which is killing me daily plus, a small cancer growth in my left back plus a right front hernia plus a broken right foot
After celebrating 35 years of marriage two weeks ago my wife has thrown me...
So, I went to see Dr. Hiroshi Mitsumoto at the New York Neurological Center at Columbia University. He agrees with my neurologist and said it is "likely" that I have ALS/MND. This was really upsetting news. He did say that it looked to be very slow progressing so hopefully he is right. He also...
Anyone with a PLS Diagnosis here on Disability? I am trying to apply and need help with filling out this Function Report Carefully. Anyone have any tips, ideas or suggestions?
Your help would be appreciated
Sean
Diagnosed with PLS/ with Pseudobulbar Palsy October 2011
I have been at war with SSI. It is the craziest thing I have ever seen in my life. We have the diagnosis. We have all the testing. We have the orders for the cough assist and ventilator (which Michael has a loaner from the ALS closet), but we can't get disability.
Uhhh, lets see Michael - take...
Despite his disability of being wheelchair-bound with ALS, Lee has managed to create music using a unique, painstaking method. Utilizing a computer and music notation software he is able to compose using one finger and a touch pad. Lee is no longer able to sing because of diminished lung...
Hello,
My name is Floyd Parton. Tomorrow I go see my neurologist to review the results of all my medical tests. We have been talking all along and I already know what he will tell me. After I get the "official diagnosis", I will begin working on getting my 100 percent DAV paperwork in and start...
Advocacy
ALS Canada Hill Day June 4-5, 2012
ALS Canada is working hard to improve the quality of life for people living with ALS. That means advocating on their behalf – and their family caregivers too – as they often experience financial hardship in the wake of this disease. We will bring...
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