dihals

  1. Clearwater AL

    Watching...

    I was watching to see if TheTreeHugger would go to four pages. It's been a long time since a Thread in the DIHALS sub-forum hit four pages. :-)
  2. Nikki J

    Forums we used to recommend to DIHALS

    They are all pretty much unavailable. Bfsrecovery is just gone apparently. It has been down for a number of weeks that I know of. Aboutbfs.com has not been able to accept new members for a long time. It is still there so old threads can be reviewed and longtime members can still post. I...
  3. WendyWooG

    Grrr....

    I just need to vent, I am cross and irritable and just Grrrrrr..... It's been a difficult few days, and the hospital bed is coming tomorrow which means moving downstairs, and I just really don't want to. I know I need to and we will make the dining room and conservatory into a nice bed sitting...
  4. F

    Thank you!!

    Life has gotten in the way of my spending much time here lately and, when I do come to the Forum, I mostly read since I truly have no sage advice to offer folks here. However, I did want to take at least a little time to offer my thanks and gratitude to the many who share their experiences here...
  5. V

    What next?

    Hi everyone I come back on the DIHALS because my symptoms are becoming worse day after day. I had to tell you about my TST, (very painful test by the way), which came back normal. Since 1 month now, I am suffering from constant twitchings (plus bodywide twitchings since 8 months) in boths...
  6. BlueTrain

    To those contemplating posting in the DIHALS section

    I decided to write this message as I understand that my first post in the DIHALS section has caused some concern among some of our undiagnosed members. The purpose of this post is to clarify a few things and to explain why you should not compare your situations with mine. To begin with, at no...
  7. Nikki J

    Where should I post?

    I think sometimes people are not sure or have different ideas. Aside from the rule that DIHALS stay in DIHALS it can be confusing and there are not hard and fast rules. Some categories are pretty clear like in Memoriam. Others not so much. For most ALS issues if you are looking for...
  8. Lkaibel

    And So It Is...

    We were diagnosed this morning. As I think some part of me has actually known since April 2nd when he came and showed me that his left toes did not rise up as high as his right (drop foot) my husband was told he has ALS. We had a whole clinic day actually, and Brian is very interested in...
  9. BlueTrain

    New (official) Member

    Hi everyone: Just wanted to say hi and briefly introduce myself. I was diagnosed with ALS in January, 2016 after about a year and a half of symptoms. I knew something was seriously wrong for quite some time, but my 4th EMG sealed the deal (I posted a lengthy and rambling message in the DIHALS...
  10. ShiftKicker

    Physiatrist appointment

    It was a bit of a dis-appointment. As in, he had no magic anti-spasticity, anti-fatigue bullet. But it was also reassuring in a strange way. The physiatrist himself was wonderful, but he did not have the answers I was looking for. My goal was to find a way to reduce night time spasticity and...
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