dihals

  1. L

    Update - 2nd Abnormal EMG

    Hi folks, I did try go back and post in my original thread (took some searching) but its been closed. Decided to give an update and ask some questions, if I may. Maybe someone was following my story Anyway, I've since been to my second neurologist, a neuromuscular specialist in Manhattan (at a...
    • lollypop
    • Thread
    • age als? back battery clinical diagnose diagnosis dihals emg falling fatigue fingers is this als life mri muscle neurologist questions story support symptoms test timeline twitches update weakness work
    • Replies: 5
    • Forum: Could this be ALS?
  2. Clearwater AL

    I know... another suggestion for Al

    Maybe in the DIHALS sub-Forum only new posters be limited to 5,000 characters. That would get to the point of their questions. (We wouldn't have to read about them picking up their pet who hasn't gained weight, or a full paragraph on how a cookie doesn't seem to go down right or they have...
  3. G

    Bulbar Onset

    Howdy everyone, my name is Greg. It seems there is another Greg Mandell here since the username gregmandell was taken :P My father got diagnosed with ALS when he was 65, started in his right foot. I have lurked this forum for a while since he was diagnosed in 2011. I still lurk the DIHALS...
    • gregmandell2
    • Thread
    • als anxiety bulbar bulbar onset diagnosed dihals father foot helpful neurologist onset problems progression questions reading speech swallowing tongue voice wrong
    • Replies: 10
    • Forum: Could this be ALS?
  4. Clearwater AL

    Bingo !!

    Bingo! I've hit 1,000 posts and two little greens squares! :-) Some posts pissed people off, some I do now regret, some too harshly to the point, some too sarcastic, some run ins with the Mods, I've admitted mistakes and few apologies (geeeze) but... many were informative and of my journey...
  5. H

    Twitching/Atrophy Doesn't Always Mean ALS

    Hi! Been a while since I've posted here, but I have a story that many people can relate to when it comes to panicking/getting anxiety towards ALS due to symptoms. For me, it all started back in October 2014. I noticed some twitching in my right arm, looked on the internet and automatically...
    • hunterross258
    • Thread
    • age als anxiety arm atrophy back brain clinical diagnosed dihals donations hope meds story symptoms tests thumb twitching
    • Replies: 4
    • Forum: Could this be ALS?
  6. S

    How does UMN and LMN damage coexist?

    Hi all, I have read this board everyday for four years, and there is something I'm still unclear on. I was hoping someone might be able to explain it to me here (for those of you who don't know me, I usually post on the PLS board. I have a UMN diagnosis of hereditary spastic paraplegia that...
  7. G

    Tired. Scared.

    Good evening. Against the advice of those close to me, I really needed to do this. Before I begin, I did very closely read the main page on this forum and have very much taken into consideration its instruction. I take this very seriously as far as being a "DIHALS" person but can only think that...
    • Giddytown
    • Thread
    • advice als? am i just crazy? autoimmune brain bulbar bulbar onset burning children choke choking depression diagnosis dihals early eye eyes familial food movement muscles onset scared stress swallowing swallowing issues symptom symptoms tests twitching weakness
    • Replies: 4
    • Forum: Could this be ALS?
  8. C

    progression question

    Hi, I just switch unfortunately the forums from DIHALS to thi one:( Doc`s told me 99 % MND and with hypperfeflexia the chances for something else are pretty slim... So a question I have marked atrophy in my both hands and very very heavy in the tongue, also some in shoulder. What to expect...
  9. T

    Concerns about DIHALS subforum

    I am fairly new on this board, but am already fascinated that some pretty strong pronouncements are made here in a sphere (brain and neuromuscular disorders) loaded with ambiguity and uncertainty. It is so common on these pages for someone to post the disclaimer that "I am not a doctor and I...
  10. Nikki J

    Missing thread

    There was a problem with an attempt to merge 2 open dihals threads that results in some posts being lost just fyi
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