diet

  1. Nuts

    Venting tomorrow---which will surely cause more venting

    I think I'm officially graduating from "we're making the most of it while we can" to "Yep, this really, really sucks". It's been a tough few months, with five ER visits and two hospital stays, three cases of pneumonia and one of the flue. No Matt, when you stop choking on every bite or sip it...
  2. D

    Family not helpful

    In another thread I explained that I didn’t think I’d be able to be enough support for my boyfriend who lives with his mom and sister. He and I have been together for 5 years but have been becoming a bit distant since my daughter died 7 months ago. I’ve been needing time to myself . But then...
  3. H

    Need some help on weight gain and stomach collapsing when I lie down

    Hello everyone. So a bit of background for me. I had some issues swallowing for over a year. I had an EMG in Oct 2017 that indicated diffuse denervation. I thought it was multiple sclerosis at first, then Kennedy disease then oculopharyngeal muscular dystrophy due to wishing it wasn't ALS and...
  4. NothingButLove

    From constipation to diarrhea - What should I do?

    In an attempt to get my wife off suppositories, I changed my wife’s diet and have gone from hard rock-like constipation to soupy diarrhea. I need to know where I go from here. Here’s the story… My wife got her feeding tube last year on September 22nd. After a couple of weeks on IsoSource...
  5. B

    32 Year Old Caucasian Male

    Hi All, This is my first time here. I will begin to tell you my story: On December 7th I came down with Influenza Type A. I had fever for 5 days and was prescribed Tamiflu on day 2. Right around that time I noticed a small pain in my left armpit - it felt like I pulled something. A few...
  6. A

    Can someone please help me out?

    Listen, I understand that tons of people post here thinking they have ALS. And I know how annoying it must be for those of you who actually have it to read these posts from people who don't have it and are just blowing things out of proportion. But I'd like some input into my situation. I mean...
  7. A

    New ALS Diagnosis

    Hi folks, I was diagnosed by a neurologist 12/2017 and go to see a second neurologist on 01/2018 who I'm told is an ALS expert. I'm in the "scared out of my mind" phase. I am looking for some sort of 'guidance" if such a thing exists. I was sort of horrified at how the first doc kind of left...
  8. R

    Worried that I might have ALS.

    Hello, My name is Lauren and I'm 24 years old. First of all, my heart goes out to anyone suffering from ALS, and any family members as well. I admire how truly brave all of you are. The reason I'm posting is that I have been noticing some strange symptoms over the last couple months, and I...
  9. C

    Concerned this may be ALS

    Hello, This is my first posting concerning the possibility I may have ALS. I'm 44 years old and until recently I have been relatively healthy. I work from home and my occupation requires me at a computer for long periods of time and my lifestyle has become more sedentary the past couple of...
  10. B

    Please help does my father have ALS

    I was wondering if someone knowledgeable would be able to help me with some concerns regarding my fathers condition. He has been tested for over a year now and we still don’t have a final diagnosis but doctor seems to be leaning towards ALS. My father was diagnosed with Ocular melanoma 13 years...
Top