diet

  1. N

    PEG tube > now I can't control my bowels?!

    hello, I have had a feeding tube now for about a week. I am strictly on the formula diet (i haven't tried pureeing Foods yet) and I haven't been able to control my bowels,. Everyday, sometimes twice a day I'm having accidents. Is this how it is going to be from now on? I feel trapped now like I...
  2. J

    Extreme hunger

    for some (un)known reasons, i'm obsessed by hunger. i change my diet (less bread, sweet, less food intake etc.). i hardly walk, maybe 2000-3000 steps/day, so i dont waste energy, but hunger drives me crazy. i'm surrounded by the food i dont use anymore (cakes, sandwiches, beverages, sweets...)...
  3. T

    DIET and WEIGHT.

    Hi all. My consultant here in the UK says it is better to increase calories 20% as muscle twitching usually saps energy. I found that I actually put weight on during my first six months of action . I started to try to drop some of that excess 20LBS with a healthy liquid fast ( Teas, Bio...
  4. M

    Progressing more and more

    Hi all, i've posted a few time and i've got nobody else to turn to for help or guidance. I've tried to go private for further testing instead of thought the NHS, but it's the same neurologist i've seen previously. I've switched GP's now as well. GP says I need to go to a Neuromuscular...
  5. H

    Questions about a tracheostomy

    I just wanted to ask any users here how it is to have a tracheostomy. I have a feeding tube and while it is a massive improvement to choking, it is a big commitment. The tube site needs to be managed and there are going to be complications (Granulation tissue, pain, leakage and infectsions)...
  6. E

    Needing some guidance!

    Hello All. I’ve thought long and hard before posting this as I’m very much aware of the daily struggles a lot of you here face. I am however finding myself on this site more and more frequently and feel untill I have my questions answered from people with real life experiences - only then will I...
  7. A

    Waiting for Neurology Follow Up Appointment

    First of all, thank you to everyone taking the time to read this. I appreciate and respect your knowledge and look forward to your feedback. I'm not sure where to start. So I will pick last summer, August I believe it was. I got on my bike and couldn't ride for more than a couple of...
  8. C

    Symptoms persisting. Respiratory Onset?

    Hello all, some of you may remember I made a post about a month ago concerning my symptoms. That thread is now closed but I will summarize everything here. My concern is that I have been having very concerning symptoms the past 2 months and I am worried about my health. I will break down...
  9. A

    ALS Concerns

    Hello all, I'll keep this short in case I'm in the wrong website. I've read the stickies here, my posting is fear driven because I'm not sure if my symptoms are relevant to ALS or not. I'm 48, prior US military, male, in generally good health but have high blood pressure/elevated cholesterol...
  10. J

    Now, after all, can I bring my cause of ALS?

    hi, since i am diagnosed, i sit at home, go to gym/spa, like i used to do in past 20 years learning about als, read pubmed, alsuntangled... i am not eligible for nurown trial. i am not usa/canada resident, im 50 y old, 210 pounds weight for last 10 years (i felt and i had left elbow luxation...
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