diaphram

  1. Bad Balance

    Good Clinic Visit

    I saw my favorite Doc yesterday and had my 6 month check-in review. I had let it stretch to 10 months and must have been worried because I had been sleeping poorly as it approached with many strange and vivid dreams. All is well for now...good O2 and diaphram check. Strength is still fine and...
  2. P

    Breathing problems

    I have a question I hope someone can answer. My husband Mark has ALS now for 8 years. He uses Bipap all night and sometimes during the day. Last clinic his PFT's went down. In one month they went from 34 to 25. His 02 levels are good. My question is how long before his 02 levels become effected...
    • Patti A
    • Thread
    • als bipap breathing breathing problems clinic diaphram hope info night pneumonia problem problems vent
    • Replies: 3
    • Forum: Current caregivers
  3. P

    Question on PFT-O2 levels etc

    I have a question I hope someone can answer. My husband Mark has ALS now for 8 years. He uses Bipap all night and sometimes during the day. Last clinic his PFT's went down. In one month they went from 34 to 25. His 02 levels are good. My question is how long before his 02 levels become effected...
  4. P

    Breathing problems-Low PFT-

    I have a question I hope someone can answer. My husband Mark has ALS now for 8 years. He uses Bipap all night and sometimes during the day. Last clinic his PFT's went down. In one month they went from 34 to 25. His 02 levels are good. My question is how long before his 02 levels become effected...
  5. L

    An update and an adios

    Hey folks, I'll share the latest update on my health and then I think it's time to say goodbye to you all for now. I found this forum because of my anxiety over symptoms, and see so many carbon copies of my first thread here, in the form of other freaked-out Google surfers. I don't think I...
    • Luke
    • Thread
    • anxiety back bipap clinic data diaphram fingers fvc goodbye health helpful muscle weakness muscles night problem sleep swallow symptoms tests update weakness
    • Replies: 9
    • Forum: Could this be ALS?
  6. L

    Tips for someone in limbo?

    Hello all, I've posted here once before about my symptoms and the background of why I came to this board, but basically I've got a number of issues going on that my neurologist is working to diagnose. After my pulminary exam, I was told that my diaphram muscle strength is "below normal, but...
    • Luke
    • Thread
    • breathing choking clinical diagnose diagnosed diaphram fatigue food headache hours life mnd muscle muscles neurologist night paralyzed problems sleep story swallowing symptoms test tongue weakness
    • Replies: 39
    • Forum: Could this be ALS?
  7. NotALS!

    anyone try the diaphram pacemaker?

    I'm having trouble breathing. Haven't been to a pulmonologist yet. I've heard of the diaphram pacemaker, has anyone tried it yet?
  8. TedH5

    The ultimate story of hope

    Let me first apologize. I know that I have not been on the forum over the last 3 months. Not a day has gone by that I have not thought of my "forum family" and have continued to keep all of it's members in my prayers. Many have visited me on FB and asked me how I was and relayed everyone's...
    • TedH5
    • Thread
    • ability advocacy advocate als als research awareness back cals cdc cell chair cure decline diagnosed diaphram early emg family guilt heart hope improvement mip mistake night nurses onset planning questions research respiratory respiratory failure stem cell story support surgery symptoms tests trial worry
    • Replies: 31
    • Forum: Stories of hope
  9. notgivnup

    Sleep Study

    Saw the pulmonologist today. They called yesterday to have me come in for follow up today visit from sleep test almost 4 weeks ago. I thought they could have just told me over the phone as I belived I would have heard sooner if something was wrong. But even they need to make money I guess. The...
  10. Bad Balance

    That's the First Thing to Go...

    I am working on re-awakening my muscles again after a month lay-off to let my ribs heal from damage due to a fall. Even without ALS, athropy is not your friend. I have a week to feel enlivened again before our next Yoga with Weights series of classes. In the mean time it is always something. I...
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