diaphragm

  1. twitchykitty

    Update re: overnight breathing

    My last thread closed so just a quick recap ( from 6 weeks ago) I added daytime issues I don't breathe well enough on my back when I wake up so I have to roll on my side where it's much easier (but uncomfortable) My last FVC was 33% August 2015 (local dr is chasing the new test up this week...
  2. T

    Personality changes?

    Has anyone else seen basic personality changes in their mate? My soul mate of 34 years, who now has ALS, was the guy who tells me dinner is good every day. If I do something for him he always goes out of his way to thank me. He never makes anyone feel like they are bothering him if they need...
  3. fizz

    First pulmonologist appointment today...

    I went to the hospital for a visit today, because as my breathing gets worse, we've had to seriously consider adding a BiPAP to my conglomeration of various medical gear. I was so nervous, but it turns out I didn't really have any reason to be. I've had some bad experiences with doctors in the...
  4. S

    Introducing myself

    Greetings. Since I’ve benefitted from reading through these forums for some time now I thought I should introduce myself and try to make some contributions of my own over time. I’m a retired academic librarian and 69 year old husband (our 47th wedding anniversary is next week) and was diagnosed...
  5. M

    Trach - pros/cons

    Hello friends in common! My husband has Bulbar onset ALS diagnosed 4/2013. Has a DPS and feeding tube. Eats through tube, can still talk some, can walk to the bathroom (with leg braces) with walker otherwise needs the power chair. Is all there mentally and a very intelligent man. His...
  6. swalker

    We lost our beloved cat

    I am not sure where to post this. Moderators, please move this as you see fit. We are cat and dog lovers. Just about since we were married 30 years ago, we have had a series of siamese cats. Pharaoh was a pure-bred, lilac point siamese. He was stunningly beautiful. He was also the dumbest...
  7. H

    Can anyone identify with my case

    My specialist assures me that I have ALS but have a PLS component or something like that. I was diagnosed with ALS back in 2000, but possibly PLS because I did not exhibit any muscle fasciculations so cardinal in ALS. After 2 more years of testing with several ALS and MS specialists it was...
  8. N

    Breathing muscles

    for the past month I have been having muscle contractions around my chest. It's like what we used to do when we got up in the morning and stretched, but this happens more trhan once when I wake up. There is a tightness under y ribs like there was in my arm before the muscles died. Is this my...
  9. Michellesews

    Deep, repetitive burping

    Is this another symptom of ALS? My husband has been diagnosed with ALS and he has begun burping...deep burps that go on and on. Is this something to do with the diaphragm? Thanks in advance for any information you can share. Michellesews
  10. anderkling

    Diaphragm Pain

    For the past several weeks, I have been experiencing increasing soreness and pain in my diaphragm. It feels like a belt around me is getting tighter and tighter. I was just introduced today to the BiPap, and was on it for some time, but it did nothing to relieve me of this pain, which is worse...
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