diaphragm

I been getting headaches a lot and the trilogy really helps my diaphragm muscles to relax but just wondering if anyone else still gets headaches even using machine. Maybe it time I am on it 24/7. I don't know, Tylenol helps but I don't like taken lots of it. Thanks love ya chally

I've been breath stacking but bought a gizmo on Amazon (very cheap) that measures your inspiratory capacity. It has % for age. I was excited because on my PFT I had pretty bad lung capacity. On this gizmo it was normal. I know it's probably off but I decided, at least, it would show relative...

Mom has FTD-PPA, ALS, and COPD. She started antibiotics this week due to an upper respiratory infection. Last week, she would wear her bipap to sleep and for a few minutes during the day on occasion. For the past couple days, she's used the bipap pretty much all day. Even with the bipap on...

Just a quick update this time. My weight is still completely stable, I don't even really think about it anymore. My legs have definitely gotten weaker over the past few months and I was feeling a little discouraged about that when I went in for my three month FVC test, when low and behold I...

The experts and the different websites that we read will all tell us that the malfunctioning motor neurons and subsequent muscle wasting is not painful. And while technically this is true it is also misleading. As in my experience ALS is very painful. Physically - We go through excruciating...

I don't know if you guys remember me....I was just diagnosed with the rarest of rare r esp it or you onset. I will be getting tracheded soon seeing as how I am 6 months pregnant. I am 29 with no money a two year old . My friends are going to take my babies as doctors say I don't have much time...

Yesterday my wife and I flew from Iowa to Arcata, Ca., 3 flights including one over 4 hours. On the long flight I experienced intermittent difficulty breathing, especially when I leaned back in the seat to rest. I experienced some lightheadedness as well. Once on the ground—in fact once at lower...

My PAL has bulbar onset ALS. He is facing deciding on trach. He has been on NIV for about 8 months and his diaphragm has become weaker, pulmonary Doctor has recommended trach. My PAL wants to make an informed decision. Yes a lot of information on web, but he wants current, straight from other...

My husband has been having problems using the full face mask it hurts the bridge of his nose. We've tried everything, gauze, gel window cling taped down, still pressure that hurts him. He refuses the nose pillows and nose mask. We are waiting on a different mask but it's too soon for delivery...

Any information on this would be great! PAL has Bulbar ALS, but not the laughing and crying. We've heard good things on the bulbar side, but concerns on side effects! Please share your experience with this medicine! Speech is almost gone, swallowing barely, FVC 40% so diaphragm is getting...