diaphragm

  1. R

    Where to from here?

    I have noticed there are a few people posting now that seem to have similar issues to what I am having. Does anyone have ideas for any types of specialists that might make sense to pursue - rheumatology, infectious disease, back to neuros, etc. - given the following? I have been told by 5...
  2. K

    Scared of choking now, when I eat...

    Hi all, Since choking on food is happening more, and I don't think it's time yet to get a J-PEG, I am curious about the "cough assist" machines I have seen mentioned in some posts here. My disease hit my phrenic nerve, thus have a weak diaphragm. And coughing is very weak. Two weeks ago, I...
  3. K

    Need some input and guidance please.

    Hi all, Sorry this is long, but I need to explain first what the problem is. There are three sister diseases: MS, ALS, and CIDP. I have CIDP. There are people with CIDP, where the normal protocol for treatment doesn't work, which is 5% of the people with CIDP. I am in that 5% group. I am now...
  4. joelc

    Interview we did

    . We were interviewed in January and the article just came out in the Vancouver Sun and the Province newspapers Feb 17th. It was done by the ALSA in BC as part of an ALS awareness campaign. Here is the content: “I try to be a positive voice” Joel Cutler always thrived on juggling multiple...
  5. rocmg

    can progressive illnesses appear to get better?

    hi all -- i'm curious if ALS, particularly the bulbar versions can appear to get better. my mum, her GP and several friends have told me that my mum's speech has improved since september/october, when she was very breathless and describes talking almost as if from her diaphragm. now she doesn't...
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