diaphragm

  1. BethU

    The Creeping Crud creeps on ...

    Just a loooong update (and a chance for me to unload a bit) ... Had my three-month clinic visit last week, and my FVC is 41%. A year ago, when I was diagnosed, it was 78%. So, clearly at this rate of progression, I'm going to need to check out hospice care PDQ. My ALSA rep said she thought my...
    • BethU
    • Thread
    • alsa back bulbar bulbar onset caregiver caregivers chair clinic dad dementia denial diaphragm family feeding feeding tube friend fvc heart hospice information insurance life lift medical meds muscles neck brace onset pain planning power power chair problems progression questions sad shoulder shower sleep story stress surgery test update walker wanted weakness wheelchair worried
    • Replies: 64
    • Forum: People with ALS (PALS)
  2. R

    Where to from here?

    I have noticed there are a few people posting now that seem to have similar issues to what I am having. Does anyone have ideas for any types of specialists that might make sense to pursue - rheumatology, infectious disease, back to neuros, etc. - given the following? I have been told by 5...
    • rom623
    • Thread
    • als back ball diagnosed diaphragm drugs early emg fasciculations fingers ideas improvement muscles night progression shoulder sleep stiffness stress swallowing tests undiagnosed weakness wrong
    • Replies: 23
    • Forum: Could this be ALS?
  3. K

    Scared of choking now, when I eat...

    Hi all, Since choking on food is happening more, and I don't think it's time yet to get a J-PEG, I am curious about the "cough assist" machines I have seen mentioned in some posts here. My disease hit my phrenic nerve, thus have a weak diaphragm. And coughing is very weak. Two weeks ago, I...
    • KEDASO
    • Thread
    • ability atrophy caregivers children choking cough assist coughing diaphragm fingers food manual natural peg pressure reflex respiratory scared therapy tracheostomy work
    • Replies: 1
    • Forum: General discussion about ALS/MND
  4. K

    Need some input and guidance please.

    Hi all, Sorry this is long, but I need to explain first what the problem is. There are three sister diseases: MS, ALS, and CIDP. I have CIDP. There are people with CIDP, where the normal protocol for treatment doesn't work, which is 5% of the people with CIDP. I am in that 5% group. I am now...
    • KEDASO
    • Thread
    • als bed bipap breathing catheter choke cold diaphragm electric wheelchair fatigue flu food heart life marijuana meds muscle nausea neurogenic bladder oxygen pain problem progression respiratory spasms support swallowing treatment twitches vent ventilator website wheelchair work
    • Replies: 6
    • Forum: General discussion about ALS/MND
  5. joelc

    Interview we did

    . We were interviewed in January and the article just came out in the Vancouver Sun and the Province newspapers Feb 17th. It was done by the ALSA in BC as part of an ALS awareness campaign. Here is the content: “I try to be a positive voice” Joel Cutler always thrived on juggling multiple...
    • joelc
    • Thread
    • als awareness alsa awareness back breathing brother children christian diagnosed diagnosis diaphragm dying early equipment family father grace housing insurance joelc life life insurance love mobility onset progression support symptoms tracheostomy ventilator voice wheelchair work
    • Replies: 18
    • Forum: People with ALS (PALS)
  6. rocmg

    can progressive illnesses appear to get better?

    hi all -- i'm curious if ALS, particularly the bulbar versions can appear to get better. my mum, her GP and several friends have told me that my mum's speech has improved since september/october, when she was very breathless and describes talking almost as if from her diaphragm. now she doesn't...
  7. M

    Tracheostomy and ventilator

    I had fluoroscopy this week showing at least half my diaphragm is paralyzed. I will be having a tracheotomy Friday and use a ventilator at night. My pulmonary specialist feels this will help my daytime functioning. Have any of you had any experience in this area? I would be interested in hearing...
  8. S

    Update from Skydog

    Hi guys I posted about three weeks ago regarding my anxiety about the fasiculations occuring over all parts of my body. I saw a GP who prescribed some anxiety meds and have since had an MRI. Appt with a neuro coming soon. I am a 31 year old male. Unfortunately the symptoms keep progressing -...
    • skydog
    • Thread
    • anxiety atrophy back diaphragm fatigue fingers hours keyboard life meds mri night oxygen progression running sleep swallowing symptoms tongue update walker work
    • Replies: 24
    • Forum: Could this be ALS?
  9. L

    What is left hemidiaphragm paralysis?

    Jay was diagnosed with bulbar on 1/3 2008. Got his bi-pap when Emory confirmed diagnosed on March 18. My hubby had pneumonia before his PEG surgery on 8/22/08. Jay has difficulty speaking(more than usual) and at this point it seems to be because of his breathing problems so we went back for...
    • leegardens
    • Thread
    • age als back breathing breathing problems bulbar cure dad dementia denial diagnosed diagnosis diaphragm family father feeding goodbye health heart hospice mad medical mistake paralysis peg pneumonia problems rant respiratory respiratory failure sad surgery test wanted
    • Replies: 4
    • Forum: General discussion about ALS/MND
  10. S

    I'm in the hospital!

    So I go to the ER for the second time in two weeks. First time the tell me I have a kidney infection (with no pain, no outward symptoms) that is affecting my diaphragm and rt lung. Antibiotics for a week and then think I'm fine. Thurs 3am (or is that Fri) anyway. Terrible pain in right lung...
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