diaphragm

Sequoia just informed me of this article. Many of us are well aware of this procedure and some have even received it. But here is a recent update. Diaphragm Pacing System Awaiting FDA Approval for ALS | MDA/ALS Newsmagazine

Hi - I'm new, My father (age 73) has been told by neurologist that he has a form of als. We’ve suspected this for a time. His most debilitating symptom (besides severe weight loss), has been shortness of breath. His pulmonologist told him that one diaphragm is paralyzed and the other is...

:-) Hello everyone! I am wondering if anyone has had experience with Diaphragm Pacing System - My partner was diagnosed just over a year ago with Bulbar ALS - he has peg tube now and is on Bi-Pap.....the doctors are considering venting him soon though he is doing well! Any thoughts or ideas...

My brother was moved to Arkansas after his diagnosis so my only contact with him now is through his new wife and I talk to him very little. It is very hard for him to talk so I have limited time on the phone with him. Mostly he'll say about 10 words max during our conversation. A common thing I...

When will the Hurt end? Over the past year I have been keeping up with the lives of many ALS victims I have been encouraged and saddened by many experiences that I been exposed to — It is now time for me to share my story – I hope it can help encourage, prepare or comfort someone during their...

I was diagnosed with ALS in Nov '09 and seem to have gone down hill since then. My legs are weak and I stumble and fall often (especially when tired). I am currently using a cane when I don't have an arm to hold onto but am transitioning to a walker this week when I am out of the house. My...

Hi everyone, My partner has been complaining of a rubber ring feeling in his abdomen, a sort of tightness. Has anyone experienced this, and is it related to abdominal muscles or diaphragm? He has no difficulties breathing, even when lying down but has been worried about this symptom. I must add...

Hi all- well, I continue to slide, and and now feel like i have internal twitches, especially in my diaphragm area. Is it possible to feel this? Theres not much left to lose- I can hold my head up, but my right arm, which allows me to write and type, is going quickly. Thats all there is...

I haven't been on in a while and I hope everyone is doing well. I appreciate the messages! I'll try to make this short but my head is spinning after a new visit to a new ALS Clinic yesterday. A little background, DH was diagnosed with MND/atypical ALS early 2007. He has had a fairly slow...

Do you want a COSMIC connection with the forum family? Are you feeling "wolfish" and need to HOWL? Please RSVP and join us for our WORLD HOWL AT THE MOON EVENT to be held every month during the full moon at 9 PM wherever you reside. This event is completely free and clothing is optional ;-)...