diagnosis

Hello, I'm a 43 year old male that started twitching in 1999. I saw a couple of Neuros back then and had an EMG that was clean. Diagnosis was simply benign fasiculations. Fast forward to late 2013, my voice started to have this weird vibration/rattle at the end of a sentence that occurred...

Thank you for adding me/us to the forum. In brief, here is our story: My husband lost his mother to ALS when she was 59 years old. She had one aunt, one uncle, and two first cousins who also passed from ALS. There were a couple other family members who may or may not have had early signs, but...

Well, I went 2 weeks ago to see the ALS specialist and he gave me an official ALS diagnosis. It’s been really hard to accept/understand this. My whole life is falling apart, I live alone and far from my family, so I decided to go back home to have more support and also because everyone is super...

Hi, I am posting about symptoms that I have been seeing in my father over the last 2 years. He is 73. He started having trouble swallowing his food about 2 years ago. He seen several doctors, and had a scope done, and it was brushed off as aging. He was told to chew his food better, and...

Sadly my dad passed away on April 27th/2018, a few weeks after his 76th birthday, seven months after his diagnosis in October 2017. My dad was a very active man right up to August 2017 when he really started to feel something wrong with his legs, arms and speech. Everything hit him at the same...

I have posted before but the thread got closed. I was wondering if this sounds like als progression. Other then body wide twitching. I will have a week where my left calf will be sore and feel heavy. Then the next week calf feels fine, but my left arm from my bicep to my hand will ache and...

Hello everyone, I am a 19 years old High school student and last year was a total nightmare for me and now it continues. I do not know what is happening with me but it scares the hell out of me. So I hope you can help me to understand these symptoms and help me maybe because i am desperate, docs...

First I want to thank the administrators and moderators of this forum for providing this resource despite battling a terrible disease. I send all of you much respect and admiration. I have read the stickies in this forum and will try to abide by all of your rules. My situation is that I am...

What criteria is used to differentiate between limb onset and flail leg. Is progression or lack of it the only measure? As always, thanks for your help.

I had sought and received useful feedback in June and November 2017. At the time, my neurologist had two possible diagnoses: a type of neuropathy or ALS. I was being treated for neuropathy with IVIG, and -- given my exercise regimen and other information -- commenters thought I did not have...