diagnosed

  1. J

    Pretty scared. Another EMG upcoming

    Hello, My story begins in January or February of this year. My left foot would fall asleep very quickly and that leg was numb. I'd had a previous dvt and high d-dimer, but no clot was found in that leg on Feb 1. I began to have long periods where my heart would race and pound hard for no...
    • jab1023
    • Thread
    • als back bed brain bulbar cdc coughing diagnosed emg foot heart hours lyme lyme disease muscles neurologist normal emg ohio onset scared speech story surgery swallowing symptoms tongue twitch twitching worried worried about als wrong
    • Replies: 20
    • Forum: Could this be ALS?
  2. tripete

    how much more...

    my wife has been going to docs something is wrong and we dont know what she just turned 46. my 21 year old son who lives nearby has been diagnosed with testicular cancer, wednesday we go to find out about treatment options. i didnt know he was ill as he was hiding it from me and just told me. i...
  3. blitzc

    First Clinic Visit Next Week-What toExpect

    I will be attending my first Clinic Visit next week. I was diagnosed in January but received a second opinion from my current doctor several weeks later. In May, I did have a follow-up visit with my doctor concerning my first three months with Radicava infusions and to check my progress. My...
    • blitzc
    • Thread
    • advice als clinic diagnosed information questions radicava second opinion test tests
    • Replies: 3
    • Forum: People with ALS (PALS)
  4. K

    What to expect

    Hi Everyone. I just want to say that I am very grateful for this site and the time that everyone takes to respond to each post. My dad started displaying symptoms last summer. He was falling a lot and having fasiculations. He went through a boat load of tests and was diagnosed with als this past...
    • karzy81
    • Thread
    • als breathing dad diagnosed diagnosis eating falling symptoms tests walker weakness
    • Replies: 6
    • Forum: Newly diagnosed
  5. A

    High Anti-GAD numbers in ALS?

    Hello, I am writing on behalf of a friend of mine who was diagnosed first with Stiff Person Symdrome (1/2018) and now this week has been given a new diagnosis of ALS. Symptoms began in August of 2017 and have been swift in progression. Frequent falls, cramps at night (or sensation of needing to...
    • Annaeliza
    • Thread
    • als als? autoimmune cramps diagnosed diagnosis friend new diagnosis night progression symptoms test twitching walker wheelchair
    • Replies: 15
    • Forum: Could this be ALS?
  6. S

    Symtom Journal

    Hope this is the right place for this question. Does anyone know of a good template that I can use to track my symptoms? I've had a lot of tests (CT, MRI, Blood, EMG, Echo, etc) and have been diagnosed with an UMD (not ALS) but all of the doctors I have seen don't know exactly what I...
  7. T

    Poems

    My name is Ron Schaffer ,.. id like to share some poems I wrote about als and some friends that passed. .hope u like them.. This Thing I often think of walking Through fields of grass and streams These things i took for granted Now they're just a dream Friends I used to have Over time...
  8. S

    Scared to death cardiologist

    Hello everyone! I'm a 27 year old junior cardiologist from Bucharest, Romania. First and foremost, ever since I first saw a patient dealing with ALS during Med School, I have the utmost respect for the ones fighting with this disease. I wouldn't consider myself an anxiety sufferer or...
    • sorin
    • Thread
    • als als? anxiety arm death diagnosed diagnosis lift neurologist neurology progressive weakness scared symptoms weakness worried
    • Replies: 2
    • Forum: Could this be ALS?
  9. H

    Can an inflamed Brainstem Lesion Rule Out ALS

    Hi all. Sorry to come hear undiagnosed, but I am going out of my mind atm... For the past year now, I have been dealing with some somewhat progressive walking-coordination symptoms, which some days are better than others. My MRI last year showed a 6mm lesion at the midbrain-pons junction. My...
    • Hoagie
    • Thread
    • als diagnosed diagnosis fasciculations heart lyme lyme disease mri neurologist onset problem reading scared symptoms undiagnosed weakness
    • Replies: 4
    • Forum: Could this be ALS?
  10. M

    ALS diagnosis..or not

    Hello all.thanx for accepting me. This is a long sorted story. My husband was diagnosed over 7 years ago,in the meantime he was diagnosed with hashimotos disease as well,although it was neglected for over 20 years. He started out with a sore shoulder on his right,then in mobility. Went to a...
Back
Top