Hello, my name is Melissa Hall. I want to just say that my mom Holly Farrell, got diagnose with lou gehrig diseases in September of 2013. And I would like to know what me and the family can do to make her life a bit more happier intill that day comes or if it comes.
Since my post here asking about Bulbar Onset, I've been cleared by my PCP and by a Neurologist. I'm still terrified of ALS, and I very likely shouldn't be. My neurologist explained that a lot of people who suffer from severe anxiety manifest symptoms very similar to ALS/MS/MND/Myopathy/Etc...
Neuro took about 30 seconds to finally diagnose mom. He said that he knew of nothing else that could cause this much decline in this short period of time. Sort of felt relief to finally see it in black and white.
Hello, I am actually posting for my husband that was just diagnosed with ALS. He was diagnosed 7 years ago but when he went for the second opinion at Emory in Atlanta, he was told that there wasn't enough changes from the muscle and nerve biopsy to rule it as ALS. Now 7 years later and here we...
Well, I've been lurking for months, probably like hundreds if not thousands of others. Not sure what compelled me to finally register and post...probably the premature acceptance of this disease in the back of my mind.
I've read all the stickies, and hundreds of posts. I know I can't...
age
als
ankle
anxiety
back
bfs
brain
clinical
diagnose
early
emg
fasciculations
fatigue
foot
health
hours
parkinsons
reading
shaking
sleep
stress
swallowing
swallowing issues
symptoms
test
tongue
twitches
twitching
weakness
So, in 3 days I'm twitching for a year. Only thing that happend in this year is in oct. the excess saliva. This is still there. And of course the pins & needles, jerks, etc, but had that since the beginning.
I can live with the twitches. It's annoying, but I don't feel them to much when I'm...
I was diagnosed 3weeks ago. I am trying to continue my usual activities for as long as I can. I get really tired and yawn a lot. Should I push myself to continue or is it better to rest more? I am pretty clueless at this point. I appreciate any help, suggestions or comments.
Since I am quite active on the forum, I felt it was appropriate giving an update on my diagnostic process.
I am not looking for advice ( although it is not a problem if I get it ) or a further discussion about my symptoms, and it did not feel like a good idea to post this in the DIHALS...
My husband Chris was an incredibly active man who had the attitude of “come on let’s do it!” His attitude to what is important in life struck me early after meeting him, and his desire to jump in and experience everything we could soon swept me along.
For most of his working life Chris ran...
Hi:
I was accepted in January, 2014, to the Undiagnosed Diseases Program at the National Institute of Health where I got a diagnosis. PLS. This was after 5 years of extensive testing on the outside. My greatest difficulty is walking. I fall less now because I use a rollator. I broke my...