Although my husband was told he had P.B.P./A.L.S a few weeks ago, the neurologist said it wasn't necessary for him to have a muscle biopsy. He had the test where he had needles inserted into his muscles and was told he hadn't any muscle disease. At that time we didn't think he had anything wrong...
Hello everyone, I hope you guys are doing all well. I joined this forum with the hopes of having someone to listen. My father was diagnosed at the end of July 2009 with ALS. I have no idea what to do. He doesn't speak any english and I am the one who goes with him to the doctor's appointment. I...
I have a PALS who fell behind on her mortgage. Since January 2009, I have made about 200 phone calls and sent as many letters in order to renegotiate the loan and bring it up to date. In that time, not a single person at JP Morgan Chase would speak with me. We just got notice that the house...
Hi everyone. Just very frustrated here. My symptoms are rapidly progressing and I feel like I can't get in to see anyone or get any help at all. In the last week alone it's become painful walking on my atrophied foot, and I noticed my right arm has become incredibly weak. This morning, I...
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I am starting to research information on grants to help pay for making a home handicap accessible. Our home has been on the market for over a year now. We have dropped the price twice, for a total of $20,000. Still hardly even any lookers. I have been scoping out what is available in our...
I found this today and thought it was interesting/inspiring reading. I hope no-one is offended...
TEN WAYS TO BEAT THE REAPER
"It ain't over till its over." (Yogi Berra)
All terminal patients need to be reminded that while there is life, there is more than hope alone. Namely:
1. A...
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My EMG came out clean. That is one painful exam. The was seen by Dr. Gangoly in Montebello, CA. I think that misspelled his name. He was great. I showed him some of my twitching and he suggested that it was something else, but perhaps not ALS. He stated that if thing get worse or stay the...
Hello everyone,
Out of desperation and hope I have arrived here. I have a 29 yr. old brother who was diagnosed with ALS just a few months ago. He was a division I football player, in great shape and had a career (financial consultant). It all started last year in June. He informed me that...
Al, thanks for your reply to my boad question...i must confess that it might be the deniAl syndrom, but i still think am not about to die, i just learnt of this death sentence this morning, and i am still dumb with shock, Although i must confess i still have a series of tests to undergo to...