desperation

Hi Everyone! I have been wanting to post on here for a long time and I am just going to do it! This post is intended for the individuals looking for an answer and who have NOT been diagnosed with ALS by a doctor. Over 2 years ago I experienced some very disturbing symptoms that ultimately...

The invitation was like a spark to a tinder box. For me it was confronting. For those of my family who happened to be at home when the invitation arrived it was the perfect opportunity to tackle me, once again, on a favourite topic. The invitation was from our good friends, to go with them to...

Out of desperation due to the darn insurance not allowing me to see a neurologist, I paid for an online consult with a neurologist--hoping that perhaps MS was a more likely diagnosis. His response was: "Your symptoms are not what is seen in MS. The twitching and cramping with muscle atrophy is...

There are seasons of life that must be faced alone; times when, in spite of our urgent longing, the counsel of wise men is locked away. In the difficult seasons of life a listening ear can be hard to find. How often have we watched that absent, distracted look on someone’s face, even while we...

I have a post on here already entitled BARELY USED EQUIPMENT, MUST GO FAST... Please disregard that. Desperation has set in for care for my father. We still have the following: The Vest, Model 105 (all hoses, cords, user guide, DVD, blue case with wheels) DynaVox "DynaVox VMax" (cords, user...

I had not dared try it but it is SO simple and it works. desperation led me to heat my socks in the microwave - 30 secs each sock and instant relief and no explosion or melting.

I will try to keep this brief, I first would like to apologize for posting a message on anyones page, done completly out of panic, and sheer desperation, which I hope everyone can understand. I'm a 39 year old female, and I have had alot of scary stuff going on the past 4 months or so. Started...

When will the Hurt end? Over the past year I have been keeping up with the lives of many ALS victims I have been encouraged and saddened by many experiences that I been exposed to — It is now time for me to share my story – I hope it can help encourage, prepare or comfort someone during their...

Monday, July 27, 2009 In My Mommas Eyes In My Mommas Eyes I see no joy In my mommas eyes I just see fear I know she has alot of questions In my mommas eyes I just see tears In my Mommas eyes I see desperation In my mommas eyes I see dread Sometimes when I look at her I think she's...

My mom was diagnosed September 2008 and has rapidly declined. She can no longer move anything except her head, a little. She can no longer speak and is can barely chew. She is 64 and doesn't use the computer so we use letter boards to communicate. I've visited a few caregiver support groups...