desperation

  1. H

    ALS fear with thenar atrophy, twitching, cramp tendency

    Hi there Great respect to your forum and the great people that are fighting the disease, friends and care givers! ALS is a shocking tragedy for humanity in 2019, 150 years after its discovery still no cure. About myself I'm Asian, live in Calgary, Canada. I'm 33, a father of 2 lovely kids at...
  2. tripete

    A new short story

    Raoljost - (A Guiding Light) Chapter 1 I wasn't able to run fast enough. My legs and arms were going as fast as I could force them to move and they burned with effort. My breathing was labored, but under control. Sweat poured from my brow and burned my eyes. I could hear the hounds of hell...
  3. M

    Help with AlS symptoms

    Hello all, I was wondering if you all could help put my mind at ease a bit or let me know if any of my symptoms sound like ALS. I read the sticky but hearing feed back from you all would greatly help me. I am a male and 27 years old just turned on feb 5th. Not the best birthday might I add. I...
  4. KimT

    Medical Grade Sheepskin

    Out of desperation, I ordered this product from New Zealand back in November when I could hardly move. It came last week. When I took it out of the box, it smelled like cooked lamb. It honestly made me sick to my stomach. I also bought the special wash for it because it was so expensive. I...
  5. KimT

    Back pain and bed

    Ok, I've reached the point of desperation. I have a queen size adjustable bed. The head and feet raise and lower. I have a rubber mattress and a non-toxic memory foam topper. Nothing is helping my back pain. Heat helps. Pain meds help. A good combination seems to be taking pain meds...
  6. A

    New here... PLEASE help me understand! I'm reaching desperation.

    Hi all, My name is Alaura. My very dear grandmother is battling MND. She has a very slowly progressing form of MND and has been battling for over 12 years. Which from my very general understanding is rare as some only get a few months. She just celebrated her 80th birthday last week. The thing...
  7. S

    Please help with finger curling

    Just a question- diagnosed Aug 26/15 ALS Bulbar inset. BiPAP, speech almost gone, just had 11 days ago the peg tube but complications from what normally is a simple procedure set me back a ways, weakening In upper body and some respiratory problems of course. My left hand has been weaker and one...
  8. N

    Need Your Help and insight! please, please!

    I am sure that this is a repeat post, possible questions have been answered elsewhere but please, I beg of you to help me. I am pregnant and not dealing with this possible diagnosis very well. I would like to give my background and would appreciate your feedback, help and experience to guide...
  9. A

    shortnes of breath !

    hi my mom has been really bad lately she is now in hospice, they come to my house regularly, but i am super afraid when i see that look of desperation in her eyes, and holds my hand tight, is this the end ? i am not sure what to excpect, can someone tell me if theres anythign they can give her...
  10. I

    want to help, i dont know how

    my mum has als, she cant mover her body at all and she has started to lose the ability to talk. the prospect of losing her speech is triggering puzzling behaviour in her that are completly out of character . Fear,anxiety, horror show on her face, sheś become incredibly suspicious of everyone...
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