design

  1. Al

    Lithium Trial a Flop

    A Randomized Clinical Trial of Lithium Carbonate with Riluzole Versus Placebo with Riluzole in ALS Shows No Benefit In February 2008, Dr. Francesco Fornai and colleagues at the University of Pisa, Italy, reported in a pilot study that lithium carbonate at dosages of 300-450 mg daily (titrated...
  2. David

    Bernice Ramsay Clinical Fellowship

    The Bernice Ramsay Clinical Research Fellowship supports specialized training in clinical care and research skills related to ALS. This fellowship is funded by the ALS Society of Canada and has a duration of two years, $100,000 awarded per year. The candidate will play a major role in a research...
  3. M

    Sensitivity to smells and chemicals

    Hi, My wife was diagnosed with PBP in June 2008. She had experienced symptoms beginning in May 2007 but no one could figure it out. Finally Dr. Peter Bosch at Mayo Clinic in Scottsdale diagnosed it. My wife has been taking Rilutek and had the PEG inserted in December this year. She is not using...
  4. rocmg

    Trophos in Europe

    From PharmaLive: Marseille, France, May 5th, 2009 - Trophos SA, a clinical stage pharmaceutical company developing innovative therapeutics for indications with under-served needs in neurology and cardiology, announced today the initiation of the pivotal efficacy study of olesoxime in...
  5. joelc

    Possible New Devices

    I have been asked to be a judge for the "2009 ALS Awards for Excellence in Design to Improve the Quality of Life with ALS" so will be in Vancouver from this Thursday through Saturday. There are a bunch of Engineering students who are developing devices to help PALS. Here are the entries; 1...
  6. B

    An update from me (undiagnosed)

    Hello friends! I have not been here for some time and at fist I have to say that that I like this new design and of course I hope you are doing as well as you can. Short remember: 1 and 3/4 year twitcher with 2 clean EMGs done after 6 and 18 months, 23 years old male. Im here since I have some...
  7. rocmg

    IPLEX for the rest of the world?

    This in earlier today... is it cause for excitement? trying to keep everything in check here... *** INSMED WILL CONTINUE TO MANAGE ALS EAP IN ITALY AND ALL IPLEX(TM) INITIATIVES IN THE U.S. IDIS WILL HAVE RESPONSIBILITY FOR REST OF WORLD RICHMOND, Va., March 30 /PRNewswire-FirstCall/ --...
  8. D

    Adapting our house to my needs

    I was diagnosed oct. 2008 just after turning 55. At that time i was starting to have trouble walking. My right foot was dropping. I started using a cane when out of the house. Now i need a walker. It is still just my legs that are affected. We live in a beautiful 2 level home and our bedrooms...
  9. M

    Improve the ADA!

    Hey all! I am really proud to be a part of this group. This survey by the Center for Inclusive Design and Environmental Access (IDeA) is meant to assist designers, architects, and legislative officials improve the Americans with Disabilities Act (ADA) and create built-environments that are...
  10. G

    what kind of device will be usefull for ALS affect person

    HI THERE, I know how people will feel when they can't do their basic house activity like watching tv opening door, using computer or any other device. My grandma will cry when she call me each and every time to do these any of these activity... I was 8 or 9 year old when she was affected by...
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