design

  1. lgelb

    Early BiPAP

    While not conducted in ALS, this small study of healthy volunteers, complemented by work in some of the other dz states mentioned below, suggests that early BiPAP might help protect neurons. BDNF administration was tried and failed in ALS, but seemingly for reasons more related to the...
  2. A

    ALSFRS-R is not very good

    I have seen many times a version of the ALSFRS that does not change the questions about cutting food and handling utensils when the person is on a feeding tube. I have not seen the original papers that may have been published about the revised ALSFRS, so I don't know if this is a flaw in the...
  3. P

    Research to Aid the ALS Community -- Please help!

    Hi all, We're a team of students at Penn State University in State College, PA. For our senior design project, we're trying to prototype new software/hardware to give emotions to the artificial voice assigned to ALS patients when they can no longer speak. To design something that aids all of...
  4. swalker

    Final Resolution to my Wheelchair Brake Problem

    In previous posts, I have described some harrowing incidents due to problems with the right brake on my Permobil C500 wheelchair. We have been chasing this problem on and off since about June. In September, we did a field repair (with the folks from NuMotion on the phone) while on our fall...
  5. A

    Fingers not working well!

    Good Morning all, Haven't been on for awhile as we are still doing fine. But hubby is struggling with button issues! He has the button helper but it still takes time. He still likes to wear his button up Levi jeans but we are needing new design on comfortable pants. Ed is still a young 54 and...
  6. I

    ALS Survey

    Hello Everyone. We are MBA students and are currently doing a design thinking project to understand why Rare diseases do not have medicines. We are focusing on ALS, and have been interviewing Drug companies, Medical Doctors, Scientists, and Government healthcare professionals. eE have designed...
  7. starente15

    Bath remodel almost there!

    I'm happy to report the bathroom is in the 'finishing touches' stage as of today. Once it's all dolled up I'll post final pics We weren't able to use the VA grant because we were too far behind the ball in getting things sorted out, but we were able to get a good deal on the work through a...
  8. Nuts

    How would you improve your PWC?

    I've struggled with where to post this, so please move it if there's a better place, Nikki. I've been working with a design engineer from Invacare who is looking for feedback from PALS and CALS on how we use the chairs and what limitations we still face in order to assist him with the design...
  9. M

    Tobii I-12 for Sale

    The Tobii I-12 is a speech generating device that enables effective communication. The I-12 has a rugged design and can be used with eye gaze, touch screen, or keyboard. The I-12 is optimized for individuals with Cerebral Palsy, Rett, ALS, or stroke, people who rely on assistive and...
  10. B

    My New Doo

    Ok...it all started Monday, bored to death in my isolation from humanity. An idea pops into my head that I needed to get a meaningful pic for my obituary. So I head to the barber for a makeover, and manscaping session. I picked out a Hair Design and the clippers started in on it. I emerged...
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