Hello ALS community, my name is Bill. First I would like to say how saddening it is to read people's stories and how brave they are fighting the various symptoms of ALS or other MND's. Good luck and God bless to all of you.
My symptoms actually started about 8 months ago wo even knowing it, I...
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Hello I am 25 and lost my uncle to als last year he passed away at 50 years of age with als the same with his mother and his grandmother as well all with als. We have just found out it is in our family 100%.
I am now worried although i know it mostly strikes at an older age i am having trouble...
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My PALS has exceeded his life expectancy, for which I am grateful. He is on hospice care at home.
He has not had oral care in about a year and I am concerned about tartar buildup and also the fact that occasionally he grinds his teeth after yawning. He has bulbar onset. He is unable to hold...
We just returned from our four-week long spring trip to Yellowstone. We stayed in the Madison campground (in our trailer) for 29 nights. It was a wonderful trip and I will write a trip report for it soon.
One adventure we did not expect was the need for me to have an emergency root canal. I...
Hi all,
I am having my amalgam fillings removed next week. They are made of 50% mercury and which is known to be a potent neurotoxin. I therefore then need to remove all mercury from my system. The best way to do this is using chelation therapy. My dentist says he can't help me, and I have...
I am not diagnosed ALS. In July I began having swallowing problems. Diagnosed esophageal motility disorder or unknown origin. I've lost 60 pounds to date. Very poor nutrition as I have a hard time getting anything down including liquids. Blood test achr for myasthenia Gravas was 0.0. 3 weeks ago...
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Has anyone tried the NeoDry saliva patches from the dentist? My brother-n-law is a dentist and he gave me a Box of these to try. They fit on the inside of each cheek (stick to the cheek). As the patch get soaked with saliva, the patch swells with a gel-like substance and at that time you can...
Thank you for taking the time to read my post. I do not wish to waste anyone's time, but I keep bouncing between terrified, angry at myself, to deciding I'm fine. I'll try to keep it short. I'm a 39 year old male who up until two years ago had no medical issues to speak of.
I'm going to...
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I have been diagnosed with bulbar onset ALS. Lately I have been experiencing numbness in my upper two front teeth. My dentist did one of those panoramic x-rays and couldn't find anything wrong. Could this be at all related to ALS?
While on the subject of ALS symptoms, lately I've been...
Hello. I am a 35 year old male. For the last six months I have been having many symptoms that makes me seriously scared of MND/ALS. I have been healthy prior to this. So now, the thriller is on, and I have came to the point that I cant resist to share my concerns here… I have found comfort in...