denial

  1. S

    very complex situation

    Hello - My wife, whom we suspected had bulbar ALS for months but she refused any intervention, was "leaving me" and packed her bags. Before she left she call 911 and she had herself removed from our home. She put an abuse charge against me with Adult Protective Services, while at the hospital...
    • soakland
    • Thread
    • abuse als arrested bipolar bulbar bulbar als cost dementia denial divorce hospice insurance medicare meds speech swallow
    • Replies: 2
    • Forum: General discussion about ALS/MND
  2. kellykago

    Diagosed with Possible ALS Yesterday

    I've been experiencing slurred speech for about a year. In Mar I saw a neurologist and in April I had a speech eval and emg that were normal. In July my neuro saw tongue fasciculation and ordered genetic testing, which showed variant on ALS2 gene. In august I repeated the speech and was...
    • kellykago
    • Thread
    • als denial diagnosed diagnosis dysphagia emg fasciculation genetic genetic testing neurologist possible als progression slurred speech speech testing tests tongue
    • Replies: 13
    • Forum: Newly diagnosed
  3. P

    the PEG and the pain and the right thing to do

    My mom went in to get her PEG today. She didn't really want it, but she said okay. I'm not really sure why. Actually, I know why. After being in denial for so long, she now will do mostly everything I suggest. It's a terrifying responsibility. I wanted her to get it because I am not ready for...
  4. D

    Integrative medicine ?

    Has anyone tried the holistic approach ? Further testing for Lyme disease, heavy metal testing ect? My husband was recently dx with ALS and from doing some research it seems like his symptoms are different. He seems to have more generalized weakness that didn't particularly start in any limbs...
    • Dengel
    • Thread
    • als back ball denial foot helpful info lyme lyme disease medicine meds pain research symptoms testing weakness
    • Replies: 13
    • Forum: Newly diagnosed
  5. T

    Is it MND/ALS? Please Help

    Hi, I am from India, and writing this to explain my Father's(51 year Old) symptoms. He started having some problems in his right leg 4 years ago which slowly worsened and finally 3 years ago extensive tests including MRI's, Auto Immune, Blood reports, EMG's and NCG. Everything came out normal...
    • tushar2709
    • Thread
    • als als? dad denervation denial emg father immune medicine mnd mnd/als mri muscles please help problems progression support symptoms tests treatment wanted
    • Replies: 12
    • Forum: Could this be ALS?
  6. M

    6 hours of testing?

    Hi guys, my mom is booked in with her specialist this October for 6 hours worth of testing. Any idea what this might entail? After the testing, will they give us a prognosis and some treatment perhaps? I'm wondering what to expect and thinking I should maybe accompany my parents to this...
    • missbelle
    • Thread
    • als dad denial diagnosis hours lyme mri progression slurred speech speech swallowing symptoms testing tests treatment work
    • Replies: 6
    • Forum: General discussion about ALS/MND
  7. F

    Steps to take to end my life sooner

    According to my Neurologist, I am progressing fast. I was officially diagnosed with a second opinion on June 8th. I turn 65 in November, have a wonderful husband, two adult children four grandchildren, and excellent friends. I have had a good life; however, I do not want to continue living this...
    • faithandlove
    • Thread
    • back caregiver children death denial depressed diagnosed documents family feeding foot insurance life love morphine neurologist peg second opinion sleep stupid swallow trilogy
    • Replies: 41
    • Forum: People with ALS (PALS)
  8. Nuts

    VMLI and SDLI

    Wow, I just had a wonderful experience with a very nice lady with the VA insurance division. She found problems with our insurances that might have cost me a lot had I lost my darling recently. We refinanced the house and did the paperwork to reapply for mortgage life insurance. It turns out...
  9. P

    learning what it means to be a caregiver

    Hi everyone. I hope you are all doing well and are in good spirits. So, we did it. Miraculously, my mom and I organized ourselves and got a condo in DC and I moved her in on Sunday. I drove her from Santa Fe most of last week (we've gotten to a point where she probably shouldn't be driving) and...
  10. M

    Finally ready to deal with my mom's diagnosis

    Hi! I posted a couple of months ago when my mom was newly diagnosed. I was in total denial, completely desperate for answers – but have finally come to terms with this. She is still in the process of being tested, in fact in October has 6 hours worth of tests booked with the neurologist – any...
    • missbelle
    • Thread
    • age als dad denial diagnosed diagnosis family heart helpful hours life lift lyme mri neurologist newly diagnosed night progression second opinion speech support swallowing symptoms testing tests treatment
    • Replies: 0
    • Forum: Current caregivers
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