denial

Hi everyone.....just have a couple of questions since I last checked in. My sister's breathing has gotten worse, not only when she's awake, but at rest as well. She is not on any breathing aids at all. It seems to me that since she has been diagnosed, she is not a priority anymore.....we have...

Hello pals, I know this is not a new subject around here, but I thought I'd get brave and post my first thread. I am starting to slur certain words, usually at night when I am tired. Friends have begun to notice it so that is helping me come out of denial about it. I have several questions. How...

im ending my denial today ALSsuspected last december progressed super fast] now bedridden] if there ever was an ALS./LYME poster boy it was me 30 Years old

My mother has been rapidly diagressing, but still has not been diagnosed with ALS. In the past year she has lost the use of her left arm and it is completely cripple, her right arm has started to become weak, she cannot hold her head up and she is in constant pain because of it, she has muscle...

Of all the things I’ve lost, I miss my mind the most. This week a letter arrived from the Neurologist who last month uttered the incongruous phrase, “It’s too soon to know”. Coming on the tail end of a taxing (but exhilarating!) 30 hour sojourn his letter sucked my remaining breath away. The...

The tropical surroundings of our Northern Territory building site were lush and verdant, and our activity attracted the interest of a fat, green frog. This guy was enormous. He was stupendous, an amphibian of gargantuan proportion! We were fitting out the kitchen, so we put him on a dinner...

I tried my best to figure out another diagnosis for what is happening to me and I see there is not any other option. I'm scared...I want to get up and fight like hell, but I just want to hide or sleep. What do I do? Just like all of you, I never thought we would be here. I'm calling all Angels...

Hi, my husband has finaly seen the neurologist again for the 2nd time having dismissed us the first time thinking it was stress and psyhciatric problems, after having 4 months off work he returned only 3 weeks ago, but his symptoms have got worse. He has agreed to an eeg, he said it was to...

All of the bloodwork, MRI, EMG are in and my dad has ALS. I have known for a little while, but getting the final word was hard for my dad. My mom is still in denial but I know she will come around. My dad is very depressed, rightfully so. I tell him about all of the wonderful people in these...

Hi, My brother in law has ALS which I think is progressing rapidly. I'm not sure of the technical words, but I'll try to explain. He refuses to use BiPap although all his numbers are not good (SATS at night go down to 84 I think) Some other test dropped 20 points in 1 month. (Vital...