denial

  1. jmlong

    Young couple dealing w/ ALS

    Hi to everyone. My husband I have been married since Oct 2008 and have a 9 month old born May of last year. In June of last year my husband was diagnosed w/ ALS. He’s only 28 years old. He also has Crohn’s disease so this makes his inability to get around very good that much harder. He has...
  2. M

    Looking for Support for my Sister!

    Hi, I desperately need your help! My sister was diagnosed is ALS in September. However she has been having trouble for almost 3 years now and is going downhill fast. Our doctor thought we both had MS and pushed to get us checked. She was told ALS and I've been told I have fibromyalgia. Her...
  3. VoiceforLinda

    I am feeling angry

    Hello, I was diagnosed with ALS on November 30th, 2010 after two years of having difficulty speaking, breathing and choking. I turned 50 on January 21st and my husband took me to Hawaii to celebrate. We have never been able to do much traveling as our financial situation has not allowed us to...
  4. L

    Mom won't use feeding tube.

    My mom is pretty much completely unable to move anything -- if she tilts her head back, she needs it tilted back forward. She can't move her arms, legs, etc. She got a feeding tube in September. She will not use it. She still tries to eat normally, but she is having trouble swallowing. Her...
  5. L

    Mom has feeding tube, won't use it.

    My mom is pretty much completely unable to move anything -- if she tilts her head back, she needs it tilted back forward. She can't move her arms, legs, etc. She got a feeding tube in September. She will not use it. She still tries to eat normally, but she is having trouble swallowing...
  6. Bad Balance

    Denial

    Each time I think I have reconciled to this awful disease and feel some peace, another life experience comes up to make me face its enormity again. First it was telling my kids, then leaving my life's work for retirement, today I met with my therapist and had to relive it all again. Just...
  7. arkallen

    One in a Crowd

    Peering down through glass doors into the lift-well I could see a fellow in a wheelchair. The elevator was obviously stuck, but he waved up at me, seeming more amused than worried. I tried to signal something reassuring to him, and rolled off to find help. He must have pressed a few more...
  8. Chase_Corin

    Father just diagnosed

    My father turned 65 on November 3rd and was diagnosed 4 days later with ALS. I don't know if the entire concept has hit us yet but I feel that we are somwhat living in a bubble. Like if we ignore it and don't talk about it it will go away. My father gets very emotional if we try to discuss it...
  9. L

    Need advice-Dad in denial

    My 81 year old dad is living with me and was diagnosed with ALS in October of 2010. He has been suffering with symptoms for over a year starting with limb onset in his legs and would not go to a doctor until I took him bc he could no longer use his left side and could barely walk. Now he has...
  10. C

    Father in law was diagnosed with ALS

    Hi Everyone, This is my first time posting here and I was searching for people to talk to about this. My father in law was diagnosed with ALS recently. I'm so heartbroken and I hate watching my husband see his dad go through this. I really just feel in denial right now. Like, I can't believe...
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