dementia

  1. lgelb

    Resource Second opinions and first clinic visits

    Do you really have ALS? A diagnosis of ALS or any other motor neuron disease (PLS, PMA, PBP, MMN) is made “by exclusion” (no higher probability presents itself) and by published criteria, most critically symptoms and muscle/nerve tests. Doctors may legitimately differ on whether you have...
    • lgelb
    • Thread
    • als als clinics alsa atrophy bipap caregivers dementia diagnose diagnosis disability exercise eyes free hospice hours lung capacity medical mmn mobility mucus orthosis power research second opinion sleep speech suction symptoms tests weakness wheelchair wrong
    • Replies: 1
    • Forum: Resources
  2. G

    JHU discovery regarding C9Orf72

    http://hub.jhu.edu/2015/09/23/als-dementia-research The research shows that the most common known risk factor for ALS and frontotemporal dementia, or FTD—a gene mutation known as C9orf72—causes cellular highways to jam, impairing brain functions. However, in tests with human and fly cells, the...
  3. L

    New to forum, Mom has ALS

    Hi, everyone :) I'm Laura, & my mom has ALS. She was officially diagnosed with Bulbar ALS just a year ago but has had symptoms for 2-3 years. Her disease has progressed rapidly; we started with hospice yesterday. I'm one of 5 children/stepchildren, but the only daughter and most local to mom and...
    • LauraJ
    • Thread
    • als bulbar bulbar als caregivers children dementia diagnosed family hospice reading support symptoms wanted
    • Replies: 4
    • Forum: New members
  4. N

    Maybe our kids can benefit

    Woukldnt it be nice if we were the last generation to die of this disease? Piss me off big time but nice. Scientists identify new drug target to treat ALS Scientists identify new drug target to treat ALS Blue is the nucleus, cyan is hUPF1, green is TDP43, red is the cell body in this image...
    • nebrhahe53
    • Thread
    • ability brain cell death dementia genetic ice kids lou gehrig's disease media medical natural neurology paralysis professor sporadic treatment
    • Replies: 2
    • Forum: Research and trials
  5. S

    ALS? bulbar?lower motor?

    I have had pin and prick and insect crawling symptoms a couple of years back. I have had difficulty swallowing a few years and burping and chest pain. My right side of the body feel weak have chest (specially on the right).. have attributed them in GERD/gastro type of problem for years (feels...
    • Sukhre
    • Thread
    • als als? arm back brain bulbar burping choking dementia emg fibromyalgia go away healing mri muscle pain problem swallowing symptoms test tests twitching voice worried worries wrong
    • Replies: 12
    • Forum: Could this be ALS?
  6. E

    ALS just shows up on list of diagnoses?

    My wife, 47, has had a diagnosis of Upper Motor Neuron Disease, along with dementia, and parkinsonism. As her caregiver for the last 18 months, I was stretched to the max. I had a heart attack 2weeks ago, and had to put my wife in a nursing home. During a family mtg. (at the nursing home) to...
  7. Nikki J

    Recent developments in C9orf72

    Which is the most common cause of FALS, also found in a percentage of SALS and in isolated FTD as well as ALS/FTD They have finally developed a c9 mouse which is huge both for research and at least in the past the FDA was reluctant to accept therapies that were only tested in IPS derived cells...
  8. Mtzu

    When to tell

    I know at some point it will be very obvious that I have something very wrong going on. For the time being it is mostly my hands that are affected so I'm able to get by in most situations without people noticing. We've told our closest friends but have not gone public. Also, we've still not...
  9. D

    Concerned about my mother.

    So this may be a bit long, I apologize. My mom is currently in a hospital on a ventilator right now and we've yet to really yet to get a diagnosis. She's been through multiple doctors over the last few years, some have said ALS or MS and some have ruled it out. So I'm hoping to get some answers...
    • Dan8490
    • Thread
    • als arm back battery concerned dementia diagnosis diaphragm early fell fingers hospice hours insurance muscle neurologist onset pneumonia research shoulder story symptoms tests therapy trach wanted weakness wheelchair wrist wrong
    • Replies: 5
    • Forum: Could this be ALS?
  10. R

    Hi All

    I recently had an EMG and at the end of the test the neurologist told me I had varaint of als she also is sending me to a als specialist whom I am booked to see in 2 months. 4 years ago my left foot went numb then I lost the use of everything below my left knee. I was able to keep working with a...
    • Ronja
    • Thread
    • als dementia emg foot neurologist stages test
    • Replies: 10
    • Forum: Newly diagnosed
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