dementia

  1. lgelb

    Early BiPAP

    While not conducted in ALS, this small study of healthy volunteers, complemented by work in some of the other dz states mentioned below, suggests that early BiPAP might help protect neurons. BDNF administration was tried and failed in ALS, but seemingly for reasons more related to the...
    • lgelb
    • Thread
    • als bdnf bipap dementia depression design diabetes early exercise hours immediately medical oxygen pressure relative sleep unknown volunteers work young
    • Replies: 4
    • Forum: Research and trials
  2. H

    My sister just lost her job

    My sister was just diagnosed with ALS in December, and a recent evaluation indicated that she is also probably in the early stages of frontotemporal dementia. She has worked in an academic position for some 35 years, but on Friday she was told that she was to begin disability leave immediately...
  3. G

    Please help, so scared..

    This is going to be a long post but I'm so terrified and I need guidance. I will start from the beginning. 3 years ago my dad ended up with foot drop, CT scan also showed pinched nerves in his back, he had back surgery and began walking with a brace. 6 Months later he fell at work and broke his...
    • GrievingSon
    • Thread
    • age back choke conversation cry dad death dementia feeding fell foot drop frustrated hip hope mistake morphine movement muscles pain please help pneumonia scared sleep surgery symptoms weakness wrong
    • Replies: 18
    • Forum: General discussion about ALS/MND
  4. L

    Familial ALS

    Hello. I posted here sometime last year and unfortunately I'm back again. I'm copying my original post here so I don't have to retyoe it to give the background. The change since last year is that now we have another family member who has been diagnosed at age 63 with ALS. She is my grandmothers...
    • lda8
    • Thread
    • age als back children conversation dementia diagnosed diagnosis diet early fals familial familial als family family history family member father ftd genetic health kids neurologist questions tests young
    • Replies: 7
    • Forum: Familial ALS (FALS)
  5. F

    Newly diagnosed and devasted

    Hi everyone, I am newly diagnosed (12-29-15) with ALS. Since my dx, I've been devastated. My mom passed away in August and I was in a pretty deep depression over that when I got my dx a couple month later. I feel like I was hit over the head with a sledgehammer, and that wasn't enough so I...
    • Firefly
    • Thread
    • als arm breathing dementia depression disability dry mouth emg heart lyme lyme disease memorial mri myasthenia gravis neurologist newly diagnosed sad second opinion speech story support swallowing test weakness wrong
    • Replies: 13
    • Forum: Newly diagnosed
  6. N

    Hello everyone!

    Good afternoon everyone, I was diagnosed by ALS specialist at Mayo Clinic here in Jacksonville just after Xmas, I have limb onset ALS. I am 28 years old and have no family history, although my grandma did have dementia unkown if it was FTD or not. Symptoms started around 7-8 months ago or...
    • Nolesac
    • Thread
    • 2nd opinion age als arm clinic dementia diagnosed diagnosis family family history ftd helpful immune ivig mmn onset sad stress weakness work wrist
    • Replies: 47
    • Forum: Newly diagnosed
  7. S

    Nursing Home concerns

    Very shortly after my father's ALS diagnosis we toured every nursing home in the area that was available as option to him. He is a veteran, and his options are pretty limited. WHen my dad was at home he insisted on doing certain things, and at the same time refused to allow us to help him do...
    • shinything
    • Thread
    • als back bed catheter chair conversation dad dementia diagnosis early falling father fell food foot hours immediately movement night nursing home pain peg positioning sling support surgery veteran video worry
    • Replies: 10
    • Forum: Current caregivers
  8. A

    Is early onset indicative of Fals?

    Something has been playing on my mind. My neurologist said there was a 40% chance of my ALS being genetic as it is so rare to get ALS at 34. I am certain my dad's side of the family does not carry the gene. He is one of 7 kids, I have 30 cousins. No one has ALS. My mum's family is small. She...
    • AP1981
    • Thread
    • als brother dad dementia early fals family genetic kids neurologist onset
    • Replies: 11
    • Forum: Familial ALS (FALS)
  9. Dave Kerwood

    My wife has been diagnosed with MND-ALS + FTD

    Good mornng This is my first post here, will keep it short and to the point. My name is Dave (52) December 23 2014 my wife (Julie) (68) was diagnosed with Frontotemporal Dementia and Motor Neurone Disease (ALS). Devastating News. I have been a full time carer from the start as I were self...
  10. starente15

    Dark Days

    I've been home for three weeks tomorrow. Just got the call that I should plan to come back in the next 24 hours as my dad is exhibiting signs of approaching death. I am so angry right now. Not only did we watch him suffer for the past three months, my mother is showing signs of possible...
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