dementia

Hi everyone Yes, I have read the stickies and I appreciate them! But, I would like to explain my situation and get your views on it. So, my fear is ALS. I am a 30 year old male, I have aways been healthy expect for some allergy. Also, my mother tongue is Swedish so I hope my English is not...

Hello, I come from an ALS family. My mother passed away due to ALS, so did my Aunt, and my Uncle passed away from frontotemporal dementia. I have never been tested but I would wager we are a C9ORF72 family. I have had a fasciculation in my right foot since about age 14. I am 22 now. It...

First off, my story... I’m a white, 29 year old male, and in the middle of December I started developing headaches. The headache was so intense I had to go to the ER at UAB in Birmingham, AL. They found a “small” vascular benign lesion in my left frontal lobe. The neuros sent me home and just...

Hi all, Thank you so much for taking time to read and respond. I️ really appreciate it and all this forum does. I have a question about familial als. My mother in law passed away from als at 57 after a 6 year battle with bulbar als. At the time it was determined that hers was sporadic. For...

Good afternoon, My father was diagnosed with ALS on October 6, 2017. The critical care neurologist said he was about 16-18 month into the progression of the disease and gave him about 8 months. In retrospect, we feel that he was probably more like 2-3 years into the disease. He passed away...

I've asked this question before but want to see if anyone has new information. When I was going through the diagnostic process, the neuro I was seeing suggested genetic testing through the Athena Lab in the Boston area. (Think this lab has a new name now) The cost was about $35,000, so it was...

On March 28 a little more than four months ago i started experiencing fatigue in my neck. I also noticed that solid and dry food seemed to get stuck in my throat after i swallowed and was very uncomfortable. As time went on i noticed i would wake up with my limbs feeling very weak, but it would...

My paternal Grandmother died from ALS when she was about 59. Her son was also diagnosed with ALS in his seventies but died from a stroke. My dad died at 83 with some form of dementia. My brother died last year from ALS at 60. As far as I know there has not been any genetic testing because of the...

So no one ever asked me if I had any family members with dementia. ALS, yes, but dementia no. ALS Clinic was yesterday. I had run across an article about frontotemporal dementia and ALS. I asked if there was a link. The neuro was concerned. My grandmother died from FTD a few years ago...

So, next week is my first appointment in the ALS Clinic. Any idea what to expect/see? I don't think this is headed anywhere good. My last EMG came back with no denervation but I definitely have a muscle in my right calf that is flaccid. It is 1.5" smaller than the left side. My...