decline

New friends, My name is Jessi and my mother in law, Eileen, was just diagnosed with ALS about 3 weeks ago. She is a 2 time breast cancer survivor so they are unsure of whether or not her ALS is related to the radiation she underwent as a part of her cancer treatment or not. She lost total use...

Hello all. Thank you for having me here. I'm very confused as to what us going on with me neurological my, so in going to give you the background. 2 years ago I had a baby by c section (spinal anaesthesia) and since thus date I have gradually been suffering neurological decline. I have been...

Hi Everyone, I hope that you're doing well. My name is Kevin and I have seen my Primary Care Physician and 3 Different Neurologists up until about a month and a half ago. About 6 months ago - I started noticing a pain in my left foot. I didn't think anything of it and it just kept getting...

Should ALS patient do physical exercise for therapy? Some say no and save energy for things that lend to quality of life. Some say only range of motion. Some posts from PALS say It helps maintains muscle tone.. My wife still has the ability to lift herself into a standing position which...

Hey all, Have only posted once or twice before. I'm the caregiver for my partner, Mike, who has been diagnosed since August 2011. He uses a power chair and a feeding tube (although he's fortunately still able to enjoy a beer every night), a sip and puff respirator as he needs, and we use a...

I think I'm officially graduating from "we're making the most of it while we can" to "Yep, this really, really sucks". It's been a tough few months, with five ER visits and two hospital stays, three cases of pneumonia and one of the flue. No Matt, when you stop choking on every bite or sip it...

I'm Janet, my 30 yr old son was diagnosed with ALS in December 2015 and he has had a progressive decline since. He uses a trilogy 24/7, is currently on tube feed and he can still talk. Over Christmas holiday he was in the hospital for pneumonia, He is back home now but he is having really...

My father passed away last Wednesday surrounded by his family. Despite all the misery that ALS inflicted on his body, his last few days were very peaceful. His condition took a drastic downturn in November, after a couple of cycles on Edaravone. We will never know if this was a cause of his...

Friday I took an hour drive (each way) to Ikea with my family. We were out the whole day. I got home and went right to bed everything hurt and I was exhausted. Since then I have very little strength and I can't get enough air to talk hardly at all. What I can say is weak and with a lot of...

My Dad is now at the stage that he is having trouble swallowing. He can still walk and talk (minimally) but his main issues are with breathing and now swallowing. He has declined the feeding tube twice, last time was in August when he went to the appointment for the tube surgery and an hour in...