decline

  1. wmilo

    Struggling with SSRI side effects

    This may be slightly off-topic and if so, please bear with me. It is a result of my diagnosis/symptoms, and I don't know of a more knowledgeable or supportive community to ask: I was diagnosed about 13 months ago, with lower extremity onset. I can still walk with difficulty, but see progressing...
  2. L

    I feel helpless

    For the last four months, I have experienced a rapid decline in health. It started with severe constipation, in which after every series of gastrointestinal test, nothing was found,except that my parsistalsis had slowed tremendously. From that point I began having problems with my legs, numbness...
  3. T

    Diagnosis At Last

    Hello everyone. My husband of 30 years was diagnosed 3rd October 2018 of Bulbar Onset/ALS. It was a relief for us all to have a diagnosis as we was wondering all sorts what was wrong with him. He started to talk slowler than usual in January this year, and gradually got worse over the months...
  4. rictak in IA

    I think I'm finally giving up

    7 1/2 years its been now. from a slight tingle in her left foot to total paralysis took roughly 2 years. very slow decline since then, really where do you decline to? her breathing is compromised, but O2 levels stay up with nightly use of the bi-pap. If it was just us, I'd probably suck it...
  5. L

    On hospice

    My PALS decline has been fast, making it difficult to get things ready in time. And now the change comes even faster. She has been on palliative care for several months, but within about 10 days, first a UTI, then thrush and another infection in the cheeks and jaws have brought us to hospice...
  6. F

    What to expect during late stages?

    Hello, I made a post a few months ago suspecting my Dad had ALS. Six months ago he was up walking, doing perfectly fine. It has been a steady decline to this point, and we have waded through rehab facilities and hospitals like they were hotels. My Dad was finally transferred to UAB Hospital...
  7. Buckhorn

    Get back up, dust myself off, and start all over again.....

    So, here I am starting my own CALS thread. It's about time I stop hijacking the threads of others. I have little to say right now - its very late and I am very tired. But I realize it is high time I start to ask my questions and post my thoughts on my own thread. My PALS (husband, Dave) is...
  8. A

    Pls or Als?

    I'm new here and just got the devastating news that my dad may have pls. He had brain and cervical spine mris, nerve conduction test, and emg. Neurologist is guessing pls as nothing else makes sense. He's referring my dad to another neurologist at uc irvine, dr. Mozzafar who has the equipment to...
  9. BlsdMama

    Glycine receptor antibody? Swallowing fluctuations?

    Anyone else been tested or positive? Curious. I'm positive and Mayo thought certainly a more rare variant of Stiff Person. However, thus far, have not responded to meds. My MND doc at our university thinks PLS. Mayo admitted this week that maybe MND is what it is afterall. But first we try...
  10. R

    NP001 Neuraltus

    https://journals.lww.com/neurotodayonline/blog/NeurologyTodayConferenceReportersAANAnnualMeeting/Pages/post.aspx?PostID=65 LOS ANGELES–An experimental drug that regulates inflammation and showed a strong signal in a pilot study in patients with amyotrophic lateral sclerosis (ALS) failed to...
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