decline

  1. cubcake

    Question about exercise

    Hi there! It has been recommended that my husband begin to perform certain strengthening exercises to help him strengthen his hips and legs to prevent some falls. I've had the understanding that stretching exercises can be good but that strengthening exercises can contribute to further decline...
  2. J

    weakness/ muscle loss - direction

    Hello All and thank you for reading my post. First off id like to first state that ive read many posts and all the stickies. My reason for posting is to see if anyone has any thoughts on what direction i should head in because ive run out of options. History- lyme disease diagnosed 8 years...
  3. N

    Dear ALS community, I’d like your opinion…

    I was diagnosed with ALS about a year ago and have always had my doubts about the diagnosis. I sought a second opinion a few months after my diagnosis and based on testing that had already been conducted, most importantly an EMG done in the time leading up to my diagnosis, my condition was...
  4. L

    Curious

    Hi, I have some questions. But first a brief history. 3yrs ago my right upper arm start to go into spasm, it would last a couple of minutes, was painful and then it went awa happend (x 4+ a day) I saw a neurologist- he thought it was stress related (I am a Uni Student) I had an MRI x 3 all...
  5. hangingon1

    Rapid decline is shocking!

    I have been a caregiver for my wife for over 2 yrs. She has had her ups and downs. This last episode caught me in unbelief. On a recent Tue. she was evaluated by hospice and told that she was doing too good and was going to be bumped off the program. This despite the increasing problems with...
  6. KrisS

    Hi, I'm new

    Hi, I'm new to his forum. I'm Kris and my husband, Dave, has ALS/FTD. I have been reading posts from this site for several months now and they have helped me cope with daily life with ALS/FTD. I finally decided to become a member so I can participate with all of you. I hope I can be of help to...
  7. H

    Think I belong here...?

    I feel kind of at home with this group. ALS didn't seem to fit cuz I've been on a slowly progressive decline for 13-15 years now. I was in my early 20's when I started limping on my r. side. I'm 39 and have been scooter bound for 7 years. I wish I had done more when I could. But the progression...
  8. hangingon1

    About to be cut off from hospice!

    Hospice has informed us that as of the 10th of July we will be cut off from their care. I was in unbelief. My wife is a 3 and a half yr. ALS victim and has increasing problems with swallowing. Her problem is that mentally she is ok and has voiced that diagnosis to the hospice nurse. He never...
  9. H

    Time to see a specialist?

    Tried to post before and it went to moderation for some reason. I sound further along in symptoms than some of you and I haven't even been officially diagnosed yet. 2 uncles on my mother's side, her 2 brothers died of ALS. I started having symptoms in my early 20's though I didn't realize it...
  10. olly

    To botox or not to botox...........

    .................That is the $100 question. well,today i had an appointment due to the past several months of bulbar spasms. said my "condition"is complexed and if baclofen is not helping with jaw/facial spasms then the last resort is botox injections but in the long run these can cause...
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