death

  1. Maoko

    How to tell teenagers?

    Hello everyone, I 'm french, my father died of als in 2015, he had done genetic testing but the results went after his death and then nobody told us anything. We all assume that it was sporadic. Then, in 2016 my sister went under a IVF procedure and needed the results, bingo: c9orf72. At this...
  2. M

    lost and need advice / opinion

    Hi everyone, I’m Maxime from France and I’m 39, have a past of intensive sports practice (but I smoke), tall and apparently strong – 1,93m, 110kg. First, I wanted to congratulate you for your wonderful empathy and the time you take to support those who desperately need it. It's pleasant to see...
  3. B

    Life after death …

    …a belief held by differing cultures across time. *”the concept that an essential part of an individual's identity or the stream of consciousness continues to manifest after the death of the physical body… *The essential aspect of the individual that lives on after death may be some partial...
  4. D

    20 Years old, going on year 3 of slowly worsening symptoms...

    I know what you’re thinking. But these symptoms are very real. . I am so sorry to bother all of you becasue I know you get these messages a lot. but please hear me out here I am 20. About 3 years ago, when I was 17, I felt my first symptoms.I vaguely remember feeling somewhat heavy or...
  5. pdcraig

    What now? part 2

    It's late, can't sleep. Just rambing, trying to put some thoughts in order. I can't believe it's been 4 months since Ferd died. It feels like I haven't seen him in forever, like it's been so much longer. And then I think it's only been 4 months, that's why this still feels so raw. I'm back at...
  6. S

    New symptoms have appeared. Is it bulbar?

    <Mod note: previous thread> Hello again! My symptoms with right hand and right leg weakness are kind of the same, nothing worse, nothing better. What intrigues me is that for three weeks now I have had a lump in my throat feeling and mild dysphagia (feeling food is stuck in my throat and I...
  7. B

    My husband believes he has Als

    My name is Bella. I am 23 years old I am married to a wonderful man. My husband is a 35 year old male and he has been sick for about 3 months with terrible symptoms. He did get some MRI's done and it did show that he has bulging disc in his neck and lower back. Also known as herniated disc in...
  8. A

    my journey winding down

    now that the end approaches thought I'd share a few things,. This group has provided the best support. My five years have been filled with joy I never thought possible. I give credit to my attitude of not letting this beast get hold of my heart and soul. Also for my determination to follow...
  9. MarieLaure

    the Burger Quizz

    hello there ! (long read) Here we have a silly nonsense game on tv. It goes like this : there are two teams made of two famous persons and a candidate. They must score points by answering questions that sometimes don't make any sense and are sometimes serious. It is more a pun and bad faith...
  10. Buckhorn

    Sorry to join this club ...

    So, this is my first post here since Dave died. It is now 3 weeks since his death. We had a beautiful memorial service / "celebration of life". I know Dave would have been mortified at what a fuss I made. I just wanted to celebrate the life of the man I loved so much. Funerals & memorial...
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