death

I heard a shorter version of this in an interview with him a couple of years ago. This is more detailed. It is shared here with his permission My name is Rick Bedlack. In the past decade I have seen more than 1500 patients here at Duke with ALS. Tonight I will tell you about one who left a...

Hello everyone, I am the only daughter of a father who was diagnosed in August. He is progressing "slowly" but I'm not really sure (no one is). My issue is that he is a severe alcoholic. Prior to this diagnosis (about 10 years ago) he was instituted as an alcoholic. He has been in and out...

Dear All! I need your help! My name is Paulo, 46 years old. I’m so glad to find this forum. Here in Portugal we haven’t almost support groups. I beg your pardon for my deficient English. When does “it” begin? In May/June 2015 I noted slight problems in swallowing certain foods (olives). Then I...

Where, O death, is your victory? Where, O death, is your sting? After all it's Hotel California, You can check-out any time you like, but you can never leave!. I have no fear of death, but I do have fear of the lock-down syndrome, I have no wish to be force fed or of artificial breathing for...

Just read this by author Mirabai Starr: "Elisabeth Kübler-Ross, pioneer of the conscious dying movement, lived to regret having described the common features of the grief journey as stages. She came to see that everyone grieves differently and that science collapses in the face of the mysteries...

I copied some statements (below) about life expectancy. Here’s what I think I know from the doctors and from helping my wife as she progressed: In ALS, death usually comes from impaired breathing, especially aspiration pneumonia due to swallowing problems. If the patient lives long enough...

I wrote a huge blog post about how my family continued to evolve after the death of our PALS. You're all welcome to view it. Maybe former CALS could post their own stories and hints about the post-PALS experience. That would be useful for everybody. --Mike

We CALS are stressed by conflicting expectations in our dual roles of spouse and caretaker. Perhaps some things would be easier emotionally if we were all professional medics, and we could see our PALS objectively as patients. We must keep our spirits up, even if our PALS are emotionally...

With all the time I have on my hands I often think about why this happening to me. ALS is a horrific disease that, about the time you think you are handling your situation OK, you get blasted by another problem. One day is worse than the next and the end is more definite than at any time in my...

Hello everyone I am a 29 year old male and have been experiencing some symptoms that have me worried to death. I will come out and say that I suffer from generalized anxiety disorder, panic disorder, major re-current depression, and bi-polar disorder for the past 15 years. About 3 weeks ago...