I'm just going to keep this short as I'm already 99% sure I have ALS and just want someone to confirm that my hands look like split hand syndrome.
My symptoms started back in June of this year when I was pregnant with my son. I started to have random twitches all over which I still have today...
Hi all. Just checking in. Nov. 4th was the 4 month anniversary of Dave's passing. I miss him every single day, but, I will admit ....... less so as time goes by. I think of him, or of phrases he would say, or things I knew he would want to talk about, multiple times per day. I have conversations...
And I wasn't there.
I spent two months in Poland with him from August to mid October, and then had to come back to the US to work and to bring my kids back to their dad.
My father begged me not to leave.
He prayed for a quick death, and he prayed for an easy death. At least those two prayers...
Hello, I have been on this forum for some time now, but I recently just joined. I know I suffer from health anxiety, a panic disorder, and long before everything else general anxiety. I recently lost 3 loved ones this year, but death isn't new to me. One of my uncles died of complications in his...
Now nothing is left to speculation. Formally diagnosed at India's best neurological institute NIMHANS...FAMILIAL AND. Do not know what to do next...I have two small kids 11 and 6 year old...as per the docs there riluzole does not help in familial cases n there is nothing that docs can do...
I’m a 26 year old female
Hi all first I wanna appreciate for the time you guys put to read about the symptoms I’m experiencing and giving feedback.
it all started a year ago when all of a sudden I couldn’t sleep. This followed by daily shakiness abnormal body movements and body ache. I also...
This is sort of an update post (last post was in the Newly Diagnosed) but I wanted to move my thread to a maybe more appropriate category.
My husband has gotten a second opinion from the chief neurologist at the University of Münster in Germany, where he is from. He was also able to...
Posting this public data separately from the current RCH4 thread as it may explain why controlled trials are doubtful as per today's posts, and provide some history. I'm not going to make this an open thread as there is enough rancor in the other RCH4 thread. For more links or clarification --...
Thank for the creation of this thread. I've been lurking for a while, but have a few concerns now...
A few years back I would notice fasciculations on my calves when getting home from work. I thought little of them at the time.
Fast forward 2016. I was bit by a tick a contracted lyme...
Doubt anyone reads this things. Just wanted to mention my Dad passed.
Came to this forum a few times for a help and it was much appreciated. His ALS moved so quickly we were unable to get him any of the benefits he deserved for being a veteran. I tried my best for my Dad. My heart goes out to...