data

  1. lgelb

    Draft FDA Guidance Document

    Just a reminder that public comments on this document are due by the 30th. And a side note: for those of you hunting prognostic markers/measures, a number are mentioned in recommending possible outcome measures for clinical trials. Not all of them are based on equally good data, but they may...
  2. D

    Masitinib phase 3 !

    PARIS, April 4, 2016 -- AB Science Announces Positive Interim Results from Phase 3 Trial of Masitinib in Amyotrophic Lateral Sclerosis (ALS) (also known as Lou Gehrig's disease) Company to Host Webcast on Masitinib in ALS in the Coming Days AB Science SA (NYSE Euronext - FR0010557264 - AB), a...
  3. M

    second torpedo

    It is probably my fault. Like the rest of you know if you get behind it can be a struggle to catch up. We are struggling with bathing, and getting me up if I fall. It is a lot harder than it should be but we are still getting by. I can still make transfers and walk short distances, but when...
  4. M

    New MDA/ALS Clinic

    Hello Everyone! A little good news for people in Northeast Oklahoma! I am still a young pup when it come motor neuron disease and their types but I am learning fast, thanks mainly to this forum so far. I am a veteran and the my therapist at the VA sent out an all call to all the social...
  5. lgelb

    Request for info from those taking Nuedexta

    Reposting an edited version, so I have hyperlinked Dr. Servera's e-mail below for those who wish to respond to him: My name is Emilio Servera, and I am the head of the Pulmonary Medicine Department in the Hospital Clinico Universitario in Valencia, Spain. I also run the Research Group for...
  6. chally

    Sleep study tonight

    I finally got the Choice Card for vets to work for this sleep study. An overnight stay and as I never sleep soundly or for any length of time I hope it pulls some data from the study.
  7. LeprechaunSean

    Six Month Lunasin Report

    Six Month Lunasin Report Started on the Duke University\McDuff regimen on Aug 15\2015. Weight: 181 lbs FVC: 46% ALS FRS: 25 For the previous year (Aug 2014 - Aug 2015) I lost about 3 lbs on average between visits to my ALS clinic, so about 9 - 10 lbs for the year. My FVC declined...
  8. M

    Bonine (meclizine)

    My wife has been having lots of trouble choking, swallowing and gagging. By accident we discovered that Bonine (meclizine) stopped the symptoms almost 100%. 1/2 pill or 1 pill in the morning gets us through the day's meals without any stress. 8 pills (8 to 16 day supply) is generally less than...
  9. KimT

    Pulmonary Function Tests

    It's only me again. I had a pulmonary function test at Mayo three months ago and one at U of F (Shands) this week. Mayo didn't include the raw data and Dr. Pulley wanted to do one of his own. It looks like U of F doesn't do specific tests of respiratory muscle strength and Mayo does...
  10. A

    Monitoring oxigen saturation and pulse

    I have a pulse oximeter but it does not record the readings. I have seen pulse oximeters at a moderate price that do make a recording and the data can be transferred to the computer or even fed continuously. But what those don't seem to have is some alarm when the oxygen saturation gets too...
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