data

  1. G

    Edavarone users - alsuntangled requesting data

    ALSUntangled is looking for PALS who purchased and tried any forms of Edaravone. Email bedla001 (at) mc.duke.edu if you are willing to share your experience for our upcoming review.
  2. H

    Company keeps Alzheimer's and ALS treatment secret

    Alzheimer's research scandal? Researchers from Swedish Karolinska institution may have found an all new pharmaceutical treatment for Alzheimer's disease, but the drug company Apodemus have been keeping results secret. An Alzheimer's treatment is worth billions, and researchers are threatened...
    • hellspawn1
    • Thread
    • age als back clinical clinical study communication data dementia drugs female friend information life medicine professor research tests treatment wanted work wrong
    • Replies: 0
    • Forum: Research and trials
  3. D

    Masitinib phase 2-3 positive final results

    AB Science announces positive top-line results of final analysis from study AB10015 of masitinib in amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease Primary analysis is a success and confirms interim analysis Company to host webcast on masitinib in ALS AB Science SA...
    • DrFab
    • Thread
    • als clinical cure data death disability drugs financial free lead medicine neurologist paralysis progression research riluzole symptoms test tests treatment trial tyrosine update urgent website
    • Replies: 12
    • Forum: Research and trials
  4. W

    Genetics of ALS/C9orf72

    Hi, I should begin this by saying that, yes, I am very much an anxious person. That being said, I'm really concerned/confused by some of the genetics data I received in my promethease report (tested by 23andme), and was wondering if anyone more familiar with the studies and genetics behind ALS...
    • Winter
    • Thread
    • als als? atrophy confused data emg family family history genetic information muscle muscle twitching pain questions reading research risk stress symptoms twitching worry
    • Replies: 8
    • Forum: Could this be ALS?
  5. KimT

    Reading Trilogy Data Card

    Out of curiosity, I put my Trilogy data card into my computer. What kind of program do I need to read it?
  6. M

    ALS Credibility Prediction Software--Please Share Treatment Experiences

    Dear ALS Patients and Families, It's really wonderful to see a place like this so active with support for each other. Thank you for being here. I'm a computer science student at Oregon State University and for my senior design project, my partners and I are building software that helps...
  7. scaredwifetx

    questions on progression and trilogy settings

    Hello, I am actually posting questions that Steve is directing me to ask. He is concerned because no one has medically (other than Laurie's help} told him what settings he should have on the Trilogy and if these settings need to change as his breathing capacity is changing. He is now using the...
  8. A

    Frequency of Fasciculations in ALS

    Hi everyone, I see that along with people that are ALS patients, many worried, looking for information or probabilities visit here. Statistics are very important in evaluating probabilities and can offer information many scientific studies do not particularly present. Therefore I'd like to post...
    • aalgi
    • Thread
    • als atrophy data diagnosed fasciculations information questions sporadic statistics symptom weakness worried
    • Replies: 1
    • Forum: Could this be ALS?
  9. M

    RCH4 Drug stopped by Dr. Bedlack

    Moderator's note: This topic was explored some months ago in this thread. dr bedlack designated eric valor as the lead investigator for the rch4 review on behalf of alsuntangled (alsu). a review for alsu should be conducted in the following manner, according to the alsu website (2 minutes into...
    • mich5
    • Thread
    • blog cure data immediately information lead money website
    • Replies: 61
    • Forum: Research and trials
  10. D

    Suffocation & choking

    It troubles me to read about PALS who fear suffocation and choking when those fears are not warranted. When doctors say “respiratory failure,” they need to do a better job explaining that this does not mean "suffocating" or “choking.” Virtually all researchers have found that the vast majority...
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