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Alzheimer's research scandal? Researchers from Swedish Karolinska institution may have found an all new pharmaceutical treatment for Alzheimer's disease, but the drug company Apodemus have been keeping results secret. An Alzheimer's treatment is worth billions, and researchers are threatened...

AB Science announces positive top-line results of final analysis from study AB10015 of masitinib in amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease Primary analysis is a success and confirms interim analysis Company to host webcast on masitinib in ALS AB Science SA...

Hi, I should begin this by saying that, yes, I am very much an anxious person. That being said, I'm really concerned/confused by some of the genetics data I received in my promethease report (tested by 23andme), and was wondering if anyone more familiar with the studies and genetics behind ALS...

Out of curiosity, I put my Trilogy data card into my computer. What kind of program do I need to read it?

Dear ALS Patients and Families, It's really wonderful to see a place like this so active with support for each other. Thank you for being here. I'm a computer science student at Oregon State University and for my senior design project, my partners and I are building software that helps...

Hello, I am actually posting questions that Steve is directing me to ask. He is concerned because no one has medically (other than Laurie's help} told him what settings he should have on the Trilogy and if these settings need to change as his breathing capacity is changing. He is now using the...

Hi everyone, I see that along with people that are ALS patients, many worried, looking for information or probabilities visit here. Statistics are very important in evaluating probabilities and can offer information many scientific studies do not particularly present. Therefore I'd like to post...

Moderator's note: This topic was explored some months ago in this thread. dr bedlack designated eric valor as the lead investigator for the rch4 review on behalf of alsuntangled (alsu). a review for alsu should be conducted in the following manner, according to the alsu website (2 minutes into...

It troubles me to read about PALS who fear suffocation and choking when those fears are not warranted. When doctors say “respiratory failure,” they need to do a better job explaining that this does not mean "suffocating" or “choking.” Virtually all researchers have found that the vast majority...

If you are diagnosed with ALS and would like to participate in a 45-minute phone survey to help with a new ALS treatment and earn $100 doing so please submit the following quick survey: https://www.surveymonkey.com/r/DKWNFBV (3 questions) Requirements: You have been diagnosed with ALS You...