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The case for “brain-glutamate transporters” and buying more time for today’s PALS. We already know that there is a large school of thought that supports that glutamate plays a role in ALS and therefore Relutek is in it self the greatest proof to that. The use of Relutek in ALS is also in...

To All: Please find below an email I sent to Coleen Maguire yesterday. The reply she sent me is very informative. For all you Okies, please let this senator know not to keep blocking the ALS National Register. If any of you are interested in the links she refers to, email me off line at...

Hello all! I'm new here and I'm in the process of being DXed. I want to thank you all for sharing so freely on here..for people new to the process, it brings great comfort as well as a wealth of knowledge. My appointment with the MND/ALS Center at the U of U is over a month away. I can't...

I've found the recent changes made to the forum, well......infuriating. I understand the reasoning and the intent. For me the inability to include substantiating and pertinent data in a post means the post is no more than hearsay. Because of the type of person I am the inability to respond in a...

By the mid-1990s there had been more or lessa consensus view that PLS could be recognizedclinically if the other conditions were excluded, that thesyndrome was more slowly progressive than ALS itself,that it was almost never familial or associated withdementia, and that onset was after age 40...

:confused: Its a short 7 question anonymous survey about occupational exposure and als/mnd; nothing formal, can be found at http://www.quibblo.com/quiz/YpeYLG/Survey-of-ALS-and-Occupations If data shows trend of any significance, it will be sent to Steve Perrin at ALS TDI Thanks in advance...

There is still a debate whether primary lateral sclerosis (PLS) is a distinct pathological entity or whether it represents one end of a continuous spectrum of motor neuron disease (MND). In this report we present four PLS patients who have been observed from the time of symptom onset (1990-1999)...

The ALS clinic forward this letter to me for mom today. apparently they had a Canada ALS center confrence call Monday on how to deal with it and start studys. She see's her GP tomorrow, Wish us luck! Feb 7, 2008 As you may be aware, a study has just been published demonstrating a positive...

This is going to be a fairly long winded post for which I apologize but I believe it is important. Without further ado: Welcome to the Vaccine Adverse Event Reporting System (VAERS) Web site. The Vaccine Adverse Event Reporting System is a cooperative program for vaccine safety of the Centers...

My father is 65 years old. He complains about being weak. He has lost muscle in both hands between his thumb and his index finger. Is this typical of ALS and what everyone is refering to atrophy, muscle lost? He never complains about muscle cramps or twitches so maybe thats a good sign? Unless...